CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2767-C58639	C58639	Marital status code	Code for the subject/participant's marital status	Core	Demographics	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2767-C58638	C58638	Sex type code other text	The free-text field relating to 'Sex Type Code' specifying other text	Supplemental	Demographics	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2767-C58637	C58637	Sex type code	Code for the subject/participant's sex	Core	Demographics	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2767-C58636	C58636	Race USA category code	Code for the subject/participant's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58562	C58562	Imaging study conclusion type	The type of conclusion from the imaging study	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58561	C58561	Imaging analysis software package name	The name of the package(s) of the software used for analysis of the imaging study	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58560	C58560	Imaging analysis reference region use indicator	Indicator as to whether or not a reference region was used for the imaging scan and analysis	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58559	C58559	Imaging adverse event radiopharmaceutical relate indicator	Indicator as to whether or not any adverse events related to the radiopharmaceutical used for the imaging scan occurred	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58558	C58558	Imaging pharmacologic effect observe indicator	Indicator as to whether or not any pharmacologic effect ws observed during the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58557	C58557	Imaging metabolite measure indicator	Indicator as to whether or not metabolites were measured during the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58556	C58556	Imaging activity peripheral blood measure indicator	Indicator as to whether or not peripheral blood activity was measured during the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58555	C58555	Imaging activity arterial blood measure indicator	Indicator as to whether or not arterial blood activity was measured during the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58554	C58554	Imaging dynamic acquisition indicator	Indicator as to whether or not dynamic acquisition was used during the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58553	C58553	Imaging patient prepare text	The free-text field describing the patient preparation (e.g. fasting) before the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58552	C58552	Imaging acquisition correct apply text	The free-text field describing the corrections that were applied during the acquisition of the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58551	C58551	Imaging acquisition correct apply indicator	Indicator as to whether or not corrections were applied during the acquisition of the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58550	C58550	Imaging acquisition plane other text	The free-text field related to 'Imaging acquisition plan type' specifying other text. The type of anatomical plane used in acquisition of the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58549	C58549	Imaging acquisition plane type	The type of anatomical plane used in acquisition of the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58548	C58548	Imaging Gaussian filter type	Type of Gaussian filter used in the imaging scan	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58547	C58547	Imaging matrix size axis 3 measurement	Measurement, in voxels, of the axis 3 dimension of the matrix within the anatomy of interest	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
F2754-C58546	C58546	Imaging matrix size axis 2 measurement	Measurement, in voxels, of the axis 2 dimension of the matrix within the anatomy of interest	Supplemental-Highly Recommended	Positron Emission Tomography (PET)	False	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome	Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.