CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C16118 MS current diagnosis type

The current Multiple Sclerosis (MS) diagnosis of the participant/subject

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16126 Acute disseminated encephalomyelitis (ADEM) characteristics type

The signs and characteristics of acute disseminated encephalomyelitis (ADEM) experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16135 MS full recovery of relapse within year indicator

Indicates whether the participant/subject with Multiple Sclerosis was fully recovered from this relapse/exacerbation within a year

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C19049 CNS other demyelinating disorder other text

The free-text field related to 'CNS other demyelinating disorder type' specifying other text. Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16119 MS onset course type

Type of onset experienced by participant/subject diagnosed with MS

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16127 CNS other demyelinating disorder name

Name of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16137 Symptoms initial category type

The body system or other categories describing where initial symptoms were present

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C19050 Symptoms initial category other text

The free-text field related to 'Symptoms initial category type' specifying other text. The body system or other categories describing where initial symptoms were present

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16120 MS current disease course type

Current Multiple Sclerosis (MS) disease course the participant/subject is experiencing

Core Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16128 CNS other demyelinating disorder type

Type of other central nervous system (CNS) demyelinating disorder experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C16138 Symptoms initial category indicator

The presence or absence of symptoms first experienced by the participant/subject

Supplemental Diagnosis and Disease Characteristics Multiple Sclerosis Multiple Sclerosis
C14707 Disease Steps Scale

The scale to describe disease steps

Supplemental Disease Steps (DS) Multiple Sclerosis Multiple Sclerosis
C16148 Biological parent twin indicator

Indicates whether the biological parent is a twin

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C17450 MS first cousin diagnosis total count

The total number of first cousins that were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C17459 MS offspring diagnosis indicator

The indicator of whether children were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C14144 Family history assessment date

Date family history was collected from the participant/ subject, family member/friend, and/or the medical record

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16149 Biological parent twin type

Type of twin the biological parent has

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C17451 MS aunt diagnosis total count

The total number of aunts that were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C00721 Family history medical condition indicator

Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16143 Parents biologically related type

Type of relation of the biologically related parents

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C16150 Adopted age value

Age at time of adoption if participant/subject was adopted

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C17452 MS aunt uncle diagnosis indicator

The indicator of whether any aunts and/or uncles were diagnosed with Multiple Sclerosis

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History - Affected Relatives and Pedigree Multiple Sclerosis Multiple Sclerosis
Displaying 101 - 125 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.