CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 612
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

Supplemental Godin Leisure-Time Exercise Questionnaire Multiple Sclerosis Multiple Sclerosis
C14710 Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking)

Supplemental Godin Leisure-Time Exercise Questionnaire Multiple Sclerosis Multiple Sclerosis
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

Supplemental Godin Leisure-Time Exercise Questionnaire Multiple Sclerosis Multiple Sclerosis
C14708 Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)

Supplemental Godin Leisure-Time Exercise Questionnaire Multiple Sclerosis Multiple Sclerosis
C10854 Grip device width setting value

Value of the width setting on the grip device used to test the participant/subject's grip strength

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C10860 Grip strength fatigue percent target hold duration

Duration in seconds that the participant was able to hold the grip device at the indicated percentage of the target value in the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C17783 Grip strength fatigue percent target not attain indicator

Indicator that the participant/subject did not attain the indicated percentage of the target value in the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C10859 Grip strength fatigue percent target value

Value of (the percentage of) target grip strength for which grip hold duration is being measured in the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C10855 Grip strength maximum measurement

Measurement of the maximum grip strength attained in the trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C10851 Grip strength test indicator

Indicator whether the grip strength testing was done

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C10852 Grip strength test performed date and time

Date (and time, if applicable and known) that grip strength testing was done

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C10856 Grip strength unit of measure

Unit of measure (pounds, kilograms, or newtons) for the maximum grip strength attained or for the target in the trial being recorded

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Supplemental Physical Exam Multiple Sclerosis Multiple Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

Exploratory Grip Strength Fatigue Multiple Sclerosis Multiple Sclerosis
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C01522 Height measurement

Measurement of participant's height

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Vital Signs Multiple Sclerosis Multiple Sclerosis
C18824 History data not obtained other text

The free-text field related to 'History data not obtained reason' specifying other text. Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C11133 History data not obtained reason

Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

Exploratory History Data Source and Reliability Multiple Sclerosis Multiple Sclerosis
C16164 Hormonal therapy start date/time

The date and time (if applicable and known) the participant started hormonal therapy

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
C16165 Hormonal therapy stop date/time

The date and time (if applicable and known) the participant stopped hormonal therapy

Supplemental Reproductive and Hormonal History Multiple Sclerosis Multiple Sclerosis
Displaying 151 - 175 of 612

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.