CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 612

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1276-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16146	C16146	Family history relative age at death value	Age at death of the participant/subject's relative, if applicable	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16159	C16159	Family history relative age at onset value	Age the participant's relative experienced the onset of the disease or disorder	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16145	C16145	Family history relative birth date	The date of birth of a related family members to the participant/subject	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16147	C16147	Family history relative death cause text	Cause of death of the participant/subject's relative, if applicable	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F1288-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's family member has donated biological sample(s) to a repository	Supplemental	Genetics	False	Multiple Sclerosis	Multiple Sclerosis
F1276-C16153	C16153	Family history relative type with MS number	For the specified relative type, the total number of relatives diagnosed with multiple sclerosis (MS)	Supplemental	Family History - Affected Relatives and Pedigree	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C57040	C57040	Fatigue diary activity type	Type of activity entered in the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C57039	C57039	Fatigue diary day indicator	Indication of Day (also broken down further into hours) within the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C57038	C57038	Fatigue diary entry end date and time	End date and time for the fatigue diary entry	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C57037	C57037	Fatigue diary entry start date and time	Start date and time for the fatigue diary entry	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F2848-C57041	C57041	Fatigue diary fatigue level value	Value of the level of fatigue an individual has entered within the Fatigue Diary	Exploratory	Fatigue/Activity Record and Diary	False	Multiple Sclerosis	Multiple Sclerosis
F1282-C16103	C16103	Fever due to intercurrent illness indicator	Indicates whether the participant/subject has fever due to intercurrent illness	Supplemental	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
F1284-C16124	C16124	First optic neuritis and first myelitis onset elapsed time value	Time between the onset of the first optic neuritis and first myelitis	Supplemental	Diagnosis and Disease Characteristics	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16183	C16183	Formula fed duration value	The duration of time the participant/subject was formula fed	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16182	C16182	Formula fed indicator	Indicates whether participant/subject was formula fed	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1280-C16184	C16184	Formula fed to infant name	The name of the formula fed to participant/subject	Supplemental	Pediatric Developmental History	False	Multiple Sclerosis	Multiple Sclerosis
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Multiple Sclerosis	Multiple Sclerosis
F1273-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Multiple Sclerosis	Multiple Sclerosis
F1275-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Supplemental	Medical History	False	Multiple Sclerosis	Multiple Sclerosis
F1279-C16167	C16167	Given birth or fathered a child indicator	Indicates whether participant/subject has ever given birth or fathered a child	Supplemental	Reproductive and Hormonal History	False	Multiple Sclerosis	Multiple Sclerosis

Displaying 126 - 150 of 612

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.