CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

1733 results.
Operations
Selected 8 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C15337 New enlarging T2 lesion count

The number of new or enlarging non-enhancing T2 lesions

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15378 Imaging new Gadolinium-enhancing lesion count

Number of new focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Multiple Sclerosis Multiple Sclerosis
C15403 Imaging change in brain volume value

Absolute or percent change in whole brain parenchymal volume as compared to a reference scan acquired at an earlier timepoint

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C15405 Imaging brain volume fraction value

Ratio of whole brain parenchymal volume to total intracranial volume or other head-size normalization volume

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended Social Status Multiple Sclerosis Multiple Sclerosis
C15647 Imaging elapsed time from injection to post-Gd T1-weighted sequence value

Delay in time from injection to start of post-gadolinium (Gd) T1-weighted sequence in minutes

Supplemental-Highly Recommended Magnetic Resonance Imaging (MRI) Multiple Sclerosis Multiple Sclerosis
C02400 Brain volumetric analysis measurement

Measured brain volume in cubic centimeters

Supplemental-Highly Recommended Imaging Analysis Results - Follow Up Multiple Sclerosis Multiple Sclerosis
1733 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.