CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 8 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C15330	Imaging clinical visit type	The type of clinical visit coinciding with scan	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
C15358	Imaging gadolinium administered in window indicator	The indicator for whether gadolinium was administered in the protocol window	Supplemental-Highly Recommended	Magnetic Resonance Imaging (MRI)	False	Multiple Sclerosis	Multiple Sclerosis
C15321	Imaging T2W brain lesion volume measurement	Total volume of all focal T2-hyperintense brain lesions	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C16100	Symptoms new or worsening neurologic indicator	Indicates whether the participant/subject has new neurologic symptoms or an acute worsening of preexisting neurologic symptoms	Supplemental-Highly Recommended	Relapse	False	Multiple Sclerosis	Multiple Sclerosis
C15328	Imaging T2 lesion volume change measurement	Absolute or percent change in T2 lesion volume as compared to a reference scan acquired at an earlier timepoint	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15337	New enlarging T2 lesion count	The number of new or enlarging non-enhancing T2 lesions	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C15378	Imaging new Gadolinium-enhancing lesion count	Number of new focal lesions that are gadolinium (Gd)-enhancing on T1-weighted brain images	Supplemental-Highly Recommended	Imaging Analysis Results - Follow Up	False	Multiple Sclerosis	Multiple Sclerosis
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Multiple Sclerosis	Multiple Sclerosis

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.