CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1191-C07100	C07100	Center for Epidemiologic Studies-Depression Scale (CES-D) - fearful indicator	Indicates how often the subject felt fearful in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental-Highly Recommended	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12894	C12894	Echocardiogram right ventricular internal dimension end diastole measurement	Measurement of right ventricular end - diastolic internal dimension (RVIDd) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C59169	C59169	Gene promoter affect exon deleted duplicated indicator	Indicator of whether known gene promoters were affected by exonic deletions/duplications	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C19017	C19017	Imaging shimming procedure type other text	The free-text field related to 'Imaging shimming procedure type', specifying other text. Type of shimming procedure (method used prior to the operation of the magnet to eliminate inhomogeneities in its field) performed on the MRS	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10724	C10724	Echocardiogram perform date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60030	C60030	Respiratory exchange ratio submaximal absolute trial end value	Value of the Respiratory Exchange Ratio (RER) (the ratio of carbon dioxide output, VCO2, to oxygen uptake, VO2) at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19595	C19595	Genetic test karyotype tissue type	Type of tissue tested in the karyotype test	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59990	C59990	Breathlessness ventilatory anaerobic threshold Borg scale	Scale value of breathlessness using the Borg Scale when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C60172	C60172	Imaging voxel signal abnormal area indicator	Indicator of whether the voxel is over an area with signal abnormality	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10733	C10733	Echocardiogram right ventricular systolic dysfunction status	Status of right ventricular systolic dysfunction on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60038	C60038	Perceived exertion submaximal absolute trial end Borg scale	Scale value of perceived exertion (PE) using the Borg Scale at the conclusion of the Submaximal Absolute Trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19605	C19605	Genetic test mitochondrial DNA variant mutation quantitative analysis evaluation method type	Type of evaluation method in quantitative analysis for mitochondrial DNA variant or mutation	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56195	C56195	Rest ventilation body temperature and pressure saturated measurement	Measurement in liters per minute (L/min) of the volume of at BTPS (body temperature, pressure, saturated) gas exhaled at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59998	C59998	Work trial start measurement	Measurement of work, in watts, generated at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C10746	C10746	Echocardiogram late mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (A) obtained by echocardiography	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60046	C60046	Tidal volume body temperature pressure saturate trial recovery start measurement	Measurement, in liters per minute (L/min), of body temperature, pressure, saturated tidal volume (Vt BTPS) at the beginning of the trial recovery period	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C56243	C56243	Rest oxygen ventilatory equivalent value	Value of the ventilatory equivalent for oxygen at rest	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60006	C60006	Respiration rate trial start measurement	Measurement, in breaths per minute (br/min), of the respiratory rate at the beginning of the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C12806	C12806	Gene protein variant mutation name	Name using the Human Genome Organisation (HUGO) variant or mutation nomenclature of the protein variant or mutation	Supplemental-Highly Recommended	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C59966	C59966	Carbon dioxide end tidal partial pressure ventilatory anaerobic threshold measurement	Measurement, in millimeters of mercury (mmHg), of partial pressure of end-tidal carbon dioxide (PETCO2) when the ventilatory anaerobic threshold (VAT) was attained	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease
F3088-C17797	C17797	Imaging contrast agent injection rate	Rate of injection, in milliliters per second (mL/s), of imaging contrast agent used, if any, for the perfusion magnetic resonance imaging (PMRI) scan	Supplemental-Highly Recommended	Brain Perfusion Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3137-C12867	C12867	Echocardiogram left ventricular trabeculation status	Status of trabeculations in the left ventricle on the echocardiogram	Supplemental-Highly Recommended	Echocardiogram	False	Mitochondrial Disease	Mitochondrial Disease
F3131-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental-Highly Recommended	Magnetic Resonance Spectroscopy (MRS)	False	Mitochondrial Disease	Mitochondrial Disease
F3128-C60014	C60014	Oxygen uptake unit mass trial other timepoint measurement	Measurement, in milliliters per kilogram per minute (mL/kg/min), of oxygen uptake (VO2) at the specified timepoint during the exercise trial	Supplemental-Highly Recommended	Staged Exercise Tolerance Test	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.