CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3133-C60251	C60251	Diagnosis primary clinical mitochondrial disease type other text	The free-text field related to 'Diagnosis primary clinical mitochondrial disease type', specifying other text. Type of primary clinical mitochondrial disease diagnosis	Core	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19601	C19601	Genetic test tissue type	Type of tissue tested	Core	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60149	C60149	Imaging scanner parameter kVp value	Number value of the kVp image acquisition parameters used for computed tomography imaging	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3133-C19611	C19611	References text	The free-text field list of references	Core	Primary Mitochondrial Disease (PMD) Genetics	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60157	C60157	Imaging hemorrhage anatomic site	Anatomic site describing the location of hemorrhage	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C18856	C18856	Imaging ventricle abnormality other text	The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60165	C60165	Imaging corpus callosum status	Status related to whether the corpus callosum appears normal or abnormal in the imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60064	C60064	Imaging diffusion b-value type other text	The free-text field related to 'Imaging diffusion b-value type', specifying other text. Type of diffusion b-value used for the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C13766	C13766	Imaging brain acute infarct anatomic site	Indicates the anatomic brain region of the acute infarct(s)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60072	C60072	Imaging posterior limb internal capsule change status	Status related to changes in the anterior limb internal capsule observed in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C18856	C18856	Imaging ventricle abnormality other text	The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C60080	C60080	Imaging subependymal cyst indicator	Indicator of whether subependymal cysts are found in the imaging study	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C60082	C60082	Imaging brain abnormal enhancement indicator	Indicator of whether there is abnormal enhancement in the brain imaging study	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60193	C60193	Imaging spine multiple timepoint magnetic resonance imaging perform count type	Type of count for the number of multiple timepoint spine magnetic resonance imaging (MRI) sessions performed on the participant	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59806	C59806	Audiometry threshold pure tone air conduction stimulus frequency type	Type of frequency of the stimulus presented for pure tone audiometric threshold air conduction testing	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C17925	C17925	Imaging contrast agent dose	Dosage of the contrast agent used	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3130-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Core	Head Computed Tomography (CT)	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60201	C60201	Imaging spinal cord atrophy indicator	Indicator of whether spinal cord atrophy is found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59814	C59814	Audiometry speech awareness threshold measurement	Measurement of the participant's speech awareness threshold obtained by speech audiometry	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3089-C19693	C19693	Imaging brainstem finding type	Type of finding related to imaging of the brainstem	Core	Imaging - Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3136-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Core	Brain Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3132-C60209	C60209	Imaging spinal cord lesion primary pattern type	Type of spinal cord lesion primary pattern found in the imaging study	Core	Spine Magnetic Resonance Imaging (MRI)	False	Mitochondrial Disease	Mitochondrial Disease
F3126-C59822	C59822	Otoacoustic emission artifact frequency text	Free-text field listing the frequencies with artifact otoacoustic emissions (OAEs)	Core	Hearing Loss in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.