CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 76 - 100 of 1834

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3091-C60237	C60237	Metabolomic type	Type of metabolic testing performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19556	C19556	Biomarker cerebrospinal fluid assessment type	Type of biomarker assessed from cerebrospinal fluid (CSF) samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C18689	C18689	Imaging anatomic site other text	The free-text field related to 'Imaging anatomic site', specifying other text. Anatomic site of body part or anatomy scanned in the imaging study	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60230	C60230	Cardiac evaluation type other text	The free-text field related to 'Cardiac evaluation type', specifying other text. Type of cardiac evaluation performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60238	C60238	Vitamin level test type	Type of vitamin levels tested	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19557	C19557	Biomarker fibroblast assessment type	Type of biomarker(s) assessed from fibroblasts samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60245	C60245	Biomarker muscle biochemistry assessment type other text	The free-text field related to 'Biomarker muscle biochemistry assessment type', specifying other text. Type of biomarker(s) assessed from muscle biochemistry	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C18701	C18701	Imaging modality type other text	The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60231	C60231	EKG type	Type of EKG (electrocardiogram) performed	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C60239	C60239	Vitamin level test type other text	The free-text field related to 'Vitamin level test type', specifying other text. Type of vitamin levels tested	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3091-C19558	C19558	Biomarker leukocyte assessment type	Type of biomarker(s) assessed from leukocytes samples	Supplemental	Biomarkers in Mitochondrial Disease	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59722	C59722	Medication depo-provera current indicator	Indicator of whether the participant is currently taking Depo-Provera (injectable medroxyprogesterone)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59730	C59730	Medication romusuzumab indicator	Indicator of whether the participant is or has ever taken romusuzumab (Evenity)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59738	C59738	Bone fracture anatomic site	The anatomic location of fractures experienced by the participant	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C20006	C20006	Bone fracture indicator	The indicator related to having a bone fracture	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59723	C59723	Medication other progesterone current indicator	Indicator of whether the participant is currently taking other progesterone forms (pill, implant, intra-uterine device, other)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59731	C59731	Primary nutrition intake source type	Type of the participant's primary source of nutritional intake	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59739	C59739	Bone fracture anatomic site other text	Free-text field to specify other anatomic site of bone fractures	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59716	C59716	Medication steroid mouth current indicator	Indicator of whether the participant is taking any oral steroids by mouth	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59724	C59724	Medication testosterone HCG current indicator	Indicator of whether the participant is currently taking any testosterone (injection, patch, gel, other) or HCG (injection)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59732	C59732	Primary nutrition intake source other text	Free-text field to specify other type of primacy source of nutritional intake	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59740	C59740	Bone fracture mechanism type	The type of mechanism that caused the participant's fracture(s)	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59717	C59717	Medication steroid inhaler current indicator	Indicator of whether the participant is taking any steroids by inhaler	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59725	C59725	Medication stop puberty current indicator	Indicator of whether the participant is currently taking any medications to stop puberty	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease
F3120-C59733	C59733	Consume dairy or substitute indicator	Indicator of whether the participant consumes dairy or dairy substitute products	Supplemental	Bone Health History	False	Mitochondrial Disease	Mitochondrial Disease

Displaying 76 - 100 of 1834

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.