CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1834
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60334 Mitochondrial disease pancreas imaging study indicator

Indicator of whether the participant had an imaging study of their pancreas

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60357 Imaging spinal cord lesion anatomic site type

Type of spinal cord anatomic site where lesions were found in the imaging study

Core Spine Magnetic Resonance Imaging (MRI) Mitochondrial Disease Mitochondrial Disease
C60356 Lab specimen urine collection type

Type of collection for the participant's urine specimen

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C60355 Lab urine specimen fast prior indicator

Indicator of whether the participant was fasting prior to collection of urine lab specimen

Supplemental Labs of Bone Mineral Metabolism Mitochondrial Disease Mitochondrial Disease
C60354 Forced vital capacity percent predict normal value

Value as a percentage of the predicted normal value of Forced Vital Capacity (FVC) to grade the severity of the abnormality, where FVC is maximum volume of air that can be exhaled as rapidly, forcefully, and completely as possible from the point of maximal inhalation

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C60353 Pulmonary function test result not applicable status

Status denoting that the results of the pulmonary function test are not applicable because the test was not performed

Supplemental Pulmonary Function Mitochondrial Disease Mitochondrial Disease
C60352 Sleep efficiency score

Score for the participant's sleep efficiency calculated by wearable technology software algorithm

Exploratory Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60351 Sleep stage 4 average duration

Duration of average time in sleep stage 4 during the recording period

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60350 Sleep total average duration

Duration of total average sleep during the recording period

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60349 Sedentary average daily duration

Duration of average time the participant was sedentary daily

Supplemental-Highly Recommended Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60348 Vigorous activity average duration

Duration of average time the participant spent in vigorous activity

Supplemental-Highly Recommended Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60347 Step average daily count

Count of the average number of steps taken by the participant daily

Supplemental-Highly Recommended Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60346 Wearable exercise technology recording duration

Duration in days of the wearable exercise technology recording

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60345 Wearable exercise technology type

Type of wearable exercise technology the participant uses

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60344 Wearable exercise technology indicator

Indicator of whether the participant uses wearable exercise technology

Supplemental Exercise Wearables Mitochondrial Disease Mitochondrial Disease
C60343 Subscapular skinfold thickness value

Value of the subscapular skinfold (under the lowest point of the shoulder blade) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C60342 Triceps skinfold thickness value

Value of the triceps skinfold (back side middle upper arm) thickness measurement

Supplemental Physical Exam Mitochondrial Disease Mitochondrial Disease
C60341 Mitochondrial disease chronic pain medication pancreatitis indicator

Indicator of whether the participant is taking chronic pain medication for pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60340 Mitochondrial disease pancreatic enzyme replacement therapy indicator

Indicator of whether the participant had pancreatic enzyme replacement therapy indicator

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60339 Mitochondrial disease fecal elastase test result status

Status to the participant's fecal elastase test result status

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60338 Mitochondrial disease fecal elastase test indicator

Indicator of whether the participant had fecal elastase testing

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60337 Mitochondrial disease genetic tests pancreas result text

The free-text field related to the participant's genetic test results

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60336 Mitochondrial disease genetic testing pancreas indicator

Indicator of whether the participant had genetic testing performed

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60335 Mitochondrial disease pancreas imaging study type

Type of imaging study of the pancreas the participant had

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
C60333 Mitochondrial disease pancreatitis hospitalize indicator

Indicator of whether the participant was hospitalized for pancreatitis

Supplemental Mitochondrial and Gastrointestinal Diseases Assessment Mitochondrial Disease Mitochondrial Disease
Displaying 1 - 25 of 1834

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.