CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 409
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

 Supplemental General Core False Huntington's Disease Huntington's Disease
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

 Supplemental General Core False Huntington's Disease Huntington's Disease
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False Huntington's Disease Huntington's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Huntington's Disease Huntington's Disease
C53952 Stroop Color and Word Test (SCW) - Interference T score

Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53951 Stroop Color and Word Test (SCW) - Color word T score

Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53906 Stroop Color and Word Test (SCW) - Color word residual score

Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53905 Stroop Color and Word Test (SCW) - Color word age educate predict score

Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53904 Stroop Color and Word Test (SCW) - Color word raw score

Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53903 Stroop Color and Word Test (SCW) - Color T score

Score (T) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53902 Stroop Color and Word Test (SCW) - Color residual score

Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53901 Stroop Color and Word Test (SCW) - Color age educate predict score

Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53900 Stroop Color and Word Test (SCW) - Color raw score

Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53899 Stroop Color and Word Test (SCW) - Word T score

Score (T) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53898 Stroop Color and Word Test (SCW) - Word residual score

Score (Residual) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53897 Stroop Color and Word Test (SCW) - Word age educate predict score

Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53896 Stroop Color and Word Test (SCW) - Word raw score

Score (raw) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C22864 Diagnosis Huntingtons Disease parent suspect indicator

Indicate whether there is a possibility of an HD diagnosis for a parent

 Supplemental Family History False Huntington's Disease Huntington's Disease
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C20384 Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale

The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C20382 Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale

The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C20381 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute duration

The duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C20380 Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale

The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C20379 Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text

The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C20378 Pittsburgh Sleep Quality Index (PSQI) - Actual sleep past month hour scale

The scaled duration (in hours) of actual sleep per night in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
Displaying 1 - 25 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.