CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19064 Imaging functional magnetic resonance imaging task other text

The free-text field related to 'Imaging functional magnetic resonance imaging task type' specifying other text. Tasks performed during a functional magnetic resonance imaging (fMRI) scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C08106 Day care end date

Date participant/subject ended day care outside of home

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C20370 Pittsburgh Sleep Quality Index (PSQI) - Sleep medication past month scale

The scale of medication use to help sleep (prescribed or 'over the counter') past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C14984 Brain atrophy coronal sections amygdala severity result

Quantitative result of the severity of amygdala atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08096 Influenza vaccine history indicator

Indicator of whether the participant/subject has ever received an influenza vaccination

Supplemental Infection History Huntington's Disease Huntington's Disease
C08149 Diagnosis final clinical death type

Physician's final clinical diagnosis for the participant/subject

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20378 Pittsburgh Sleep Quality Index (PSQI) - Actual sleep past month hour scale

The scaled duration (in hours) of actual sleep per night in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C00722 Family history medical condition relative type

Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Huntington's Disease Huntington's Disease
C14957 Huntingtons Disease developing motor symptom type

Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14992 Brain atrophy striatum status cribrosus or lacunaris severity result

Quantitative result of the severity of atrophy located in the status cribrosus or lacunaris, or both

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08116 Meningitis or encephalitis episode age value

Participant's/subject's age at the time of the meningitis or encephalitis episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C08158 Brain weight measurement

Weight of the participant's/subject's brain in grams

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C14947 Family history relative type biological sample in repository count

The number of family members that have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C15107 Huntingtons Disease diagnosis grade

The grade of severity of HD or amyloid angiopathy severity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15067 Brain atrophy pontine nuclei globosum neuronal tangles status

Status of globosum neuronal tangles (GNT) in the pontine nuclei

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17753 Macroscopic examination brain text

Note regarding macroscopic examination of fresh or fixed brain parts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15075 Brain atrophy cerebellum cortical neuronal loss in receptive layer indicator

Indicator of cortical neuronal loss in the receptive layer (granular) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17761 Striatum atrophy subthalamic nucleus atrophy status

Status of atrophy in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15083 Brain atrophy cerebellum dentate nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the dentate nucleus of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15091 Cortical infarcts single or multiple description text

The text description of the cortical microinfarcts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15051 Brain atrophy cerebral white matter myelin loss indicator

Indicator of myelin loss in the cerebral white matter

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 226 - 250 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.