CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 409
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20377 Pittsburgh Sleep Quality Index (PSQI) - Past month bed time

The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C14961 Imaging excitation number

Number of times each line of k-space data is acquired during the scan

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C18989 Huntingtons Disease motor symptom first appeared self report other text

The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C14708 Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)

 Supplemental Godin Leisure-Time Exercise Questionnaire False Huntington's Disease Huntington's Disease
C18669 Diagnosis final clinical death other text

The free-text field related to 'Diagnosis final clinical death type' specifying other text. Physician's final clinical diagnosis for the participant/subject

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17749 Imaging neurologic other data collected type

Other types of neuroimaging data that may have been collected during this scan visit

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C20353 Pittsburgh Sleep Quality Index (PSQI) - trouble sleep 30 minutes past month scale

The scale to which the participant had trouble getting to sleep within 30 minutes during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C19063 Imaging neurologic other data collected other text

The free-text field related to 'Imaging neurologic other data collected type' specifying other text. Other types of neuroimaging data that may have been collected during this scan visit

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15050 Brain atrophy red nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the red nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14941 Diagnosis certainty percentage range type

Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C14982 Brain atrophy coronal sections hippocampal formation severity result

Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08086 Sibling current age value

Current age of the living sibling

 Supplemental History of Early Exposure to Huntington's Disease False Huntington's Disease Huntington's Disease
C08147 Data source

Source of the data provided on the case report form

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15110 Atherosclerotic luminal stenosis percentage range

Range for the estimated luminal stenosis percentage if stenotic vascular changes (of the circle of Willis)

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15070 Brain atrophy medulla oblongata dorsal nucleus of vagus reticular formation severity result

Quantitative result of the severity of dorsal nucleus of vagus reticular formation: LBCN and LN in the medulla oblongata

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14990 Brain atrophy striatum globus pallidus internal segment severity result

Quantitative result of the severity of atrophy located in the globus pallidus, internal segment.

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08109 Preschool start date

Date participant/subject first started preschool

 Supplemental History of Early Exposure to Huntington's Disease False Huntington's Disease Huntington's Disease
C08156 Specimen other postmortem indicator

Indicator whether other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C11136 Country origin paternal name

Father's country or countries of origin

 Supplemental Demographics False Huntington's Disease Huntington's Disease
C17756 Striatum atrophy claustrum atrophy severity result

Quantitative result of the severity of atrophy located in the claustrum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15078 Brain atrophy cerebellum cortical neuronal loss in effective layer severity result

Quantitative result of the severity of cortical neuronal loss in the effective layer of the cerebellum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15026 Brain atrophy cerebellum severity result

Quantitative result of the severity of cerebellum atrophy located in the striatum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08099 Pneumonia history indicator

Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician

 Supplemental Infection History False Huntington's Disease Huntington's Disease
C08168 Immunohistochemistry stain method name

Name of staining method used for immunohistochemistry

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C10813 Adopted indicator

Indicator of whether the participant was adopted

 Supplemental Family History False Huntington's Disease Huntington's Disease
Displaying 51 - 75 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.