CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1207-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Huntington's Disease	Huntington's Disease
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1207-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Huntington's Disease	Huntington's Disease
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1207-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Huntington's Disease	Huntington's Disease
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C15110	C15110	Atherosclerotic luminal stenosis percentage range	Range for the estimated luminal stenosis percentage if stenotic vascular changes (of the circle of Willis)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15070	C15070	Brain atrophy medulla oblongata dorsal nucleus of vagus reticular formation severity result	Quantitative result of the severity of dorsal nucleus of vagus reticular formation: LBCN and LN in the medulla oblongata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17743	C17743	Physician confidence level basis type	What the physician confidence level is primarily based on	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17756	C17756	Striatum atrophy claustrum atrophy severity result	Quantitative result of the severity of atrophy located in the claustrum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C15572	C15572	Imaging diffusion direction count	Count of diffusion directions in the associated diffusion imaging study	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15078	C15078	Brain atrophy cerebellum cortical neuronal loss in effective layer severity result	Quantitative result of the severity of cortical neuronal loss in the effective layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17764	C17764	Striatum atrophy red nucleus atrophy severity result	Quantitative result of the severity of atrophy located in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C18717	C18717	Imaging scanner model other text	The free-text field related to 'Imaging scanner model name' specifying other text. Name of model of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15086	C15086	Ischemic or hemorrhagic changes event category	Category of the ischemic or hemorrhagic changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15094	C15094	Lacunes single or multiple description text	The text description of the lacunes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.