CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 409
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08081 Twin sibling type

Type of twin the participant/subject has

 Supplemental History of Early Exposure to Huntington's Disease False Huntington's Disease Huntington's Disease
C08080 Twin sibling indicator

Indicator of whether the participant/subject has a twin brother or sister

 Supplemental History of Early Exposure to Huntington's Disease False Huntington's Disease Huntington's Disease
C17736 Symptoms first appeared informant status

The status whether the first motor symptom(s) were noted by the person completing the form

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C18670 Subscribed drug or substance illicitly used category other text

The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Non-prescribed Drug Use Questionnaire False Huntington's Disease Huntington's Disease
C00712 Subscribed drug or substance illicitly used category

Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Non-prescribed Drug Use Questionnaire False Huntington's Disease Huntington's Disease
C53899 Stroop Color and Word Test (SCW) - Word T score

Score (T) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53898 Stroop Color and Word Test (SCW) - Word residual score

Score (Residual) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53896 Stroop Color and Word Test (SCW) - Word raw score

Score (raw) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53897 Stroop Color and Word Test (SCW) - Word age educate predict score

Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53952 Stroop Color and Word Test (SCW) - Interference T score

Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53951 Stroop Color and Word Test (SCW) - Color word T score

Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53906 Stroop Color and Word Test (SCW) - Color word residual score

Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53904 Stroop Color and Word Test (SCW) - Color word raw score

Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53905 Stroop Color and Word Test (SCW) - Color word age educate predict score

Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53903 Stroop Color and Word Test (SCW) - Color T score

Score (T) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53902 Stroop Color and Word Test (SCW) - Color residual score

Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53900 Stroop Color and Word Test (SCW) - Color raw score

Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C53901 Stroop Color and Word Test (SCW) - Color age educate predict score

Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C17759 Striatum atrophy thalamus atrophy status

Status of atrophy in the thalamus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17760 Striatum atrophy thalamus atrophy severity result

Quantitative result of the severity of atrophy located in the thalamus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17761 Striatum atrophy subthalamic nucleus atrophy status

Status of atrophy in the subthalamic nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17762 Striatum atrophy subthalamic nucleus atrophy severity result

Quantitative result of the severity of atrophy located in the subthalamic nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17763 Striatum atrophy red nucleus atrophy status

Status of atrophy in the red nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17764 Striatum atrophy red nucleus atrophy severity result

Quantitative result of the severity of atrophy located in the red nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17757 Striatum atrophy hypothalamus atrophy status

Status of atrophy in the hypothalamus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
Displaying 1 - 25 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.