CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2611-C15520	C15520	Genetic testing performed indicator	Indicator of whether the participant had genetic testing performed	Supplemental	DNA Elements	False	Headache	Headache
F2490-C55966	C55966	Alcohol use stopped age not applicable status	Status indicating that age quit drinking does not apply to the subject/participant, as they are still ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Headache	Headache
F2491-C56711	C56711	Imaging magnetoencephalography topographic distribution other text	Text describing another form of topographic distribution used for analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59673	C59673	Headache before traumatic brain injury complete freedom monthly day count	Count of monthly frequency of complete freedom from headache the participant/subject experienced prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2629-C56021	C56021	Sibling decease count	The total number of deceased siblings that the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F3059-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15921	C15921	Quantitative sensory testing maximum stimulation intensity value	Measure of the maximum level of stimulation used during the testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15642	C15642	Imaging statistical parametric mapping contrasts text	Define contrasts in statistical parametric mapping	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2613-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Concomitant Medications	False	Headache	Headache
F2626-C16025	C16025	Family history second-degree physician diagnosis count	The number of second-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2492-C56746	C56746	Cortical evoked potential stimulation parameter somatosenory type other text	Text describing another somatosensory stimulation used for recording the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2611-C19011	C19011	Gene mutation specify text	The free-text field related to 'Gene mutation type'. The type of genetic variant or mutation shown	Supplemental	DNA Elements	False	Headache	Headache
F2490-C56029	C56029	Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month length value	The value of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2491-C56719	C56719	Imaging magnetoencephalography source imaging other text	Text describing another source imaging parameter used for the analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Headache	Headache
F2630-C08258	C08258	Imaging radioligand type	Isotope-labeled bioactive compound (generic or common name) used in the imaging scan	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F3059-C19035	C19035	Headache aura symptom other text	The free-text field related to 'Headache aura symptom type' specifying other text. Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15929	C15929	Quantitative sensory testing stimulus duration	Duration of stimulus used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2613-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Concomitant Medications	False	Headache	Headache
F2629-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Supplemental	Medical and Family History	False	Headache	Headache
F2492-C56754	C56754	Cortical evoked potential recorded response type	The type of recorded response from the evoked potential recording	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2634-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2611-C56038	C56038	Genetic test performed other text	The free-text field specifying the other genetic test that was performed	Supplemental	DNA Elements	False	Headache	Headache
F2491-C15638	C15638	Imaging multiple comparisons method text	Type of method(s) chosen for correcting for multiple comparisons	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache

Displaying 126 - 150 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.