CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2673-C56779	C56779	Headache sound aggravate indicator	The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15893	C15893	Headache retire bed indicator	Indicates whether the participant/subject went to bed with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2032-C07436	C07436	Patient Health Questionnaire (PHQ) - Feeling failure score	Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15976	C15976	Headache post initial study medication date and time	The actual time (24 hr clock) after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2624-C56042	C56042	Headache severity scale	The scale of the amount of headache the participant/subject is experiencing	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2684-C53077	C53077	Migraine headache light indicator	Indicator as to whether light bothers participant/subject when experiencing a migraine headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C56784	C56784	Headache re-start medication taken other text	Text describing another type of pain medication taken by the participant/subject for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2685-C13211	C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2632-C18700	C18700	Imaging matrix size value other text	The free-text field related to 'Imaging matrix size value', specifying other text. Value representing the imaging matrix size in millimeters	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C59629	C59629	Headache inadequate treatment duration	Duration of participant's/subject's inadequately treated headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C19018	C19018	Imaging transcranial magnetic stimulation current direction other text	The free-text field related to 'Imaging transcranial magnetic stimulation current direction type' specifying other text. The direction of current used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2640-C15904	C15904	Body mass index measurement method type	Type of method used to calculate the participant/subject's body mass index (BMI)	Supplemental	Vital Signs	False	Headache	Headache
F2617-C16018	C16018	Pregnancy complication indicator	Indicator of whether the participant/subject had complications during the pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15576	C15576	Imaging diffusion b-value count	Count of b-values within the diffusion imaging study	Supplemental	Anatomical Imaging	False	Headache	Headache
F2610-C56113	C56113	CSF specimen white blood cell count	The number of white blood cells (WBCs) counted in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2621-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Social Status	False	Headache	Headache
F2614-C59016	C59016	Imaging metabolite quantification procedure phantom data reference acquire indicator	Whether the phantom data was acquired for reference	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2491-C56679	C56679	Imaging magnetoencephalography waveform average other text	Text describing the waveform average for another type of averaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C54754	C54754	Specimen collection tube other text	The free-text field related to other tube for specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56639	C56639	Imaging minimum inter epoch time response based interval	The response-based interval of the minimum inter-epoch (trial) time	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59637	C59637	Headache additional symptom type	Type of additional symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C55791	C55791	Imaging transcranial magnetic stimulation effect measure type	The type of effect measure performed, as part of the Transcraniam Magnetic Stimulation (TMS) Imaging test	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2617-C16173	C16173	Pregnancy estimate delivery date and time	The date and time (if applicable) the participant is estimated to deliver the pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15611	C15611	Imaging standard average brain text	Text representing the standard average brain used	Supplemental	Anatomical Imaging	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.