CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59631	C59631	Headache laterality type	Type of side were headache is located	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59640	C59640	Headache additional symptom unilateral same side present indicator	Indicator of whether the participant's/subject's symptom is present on the same side to the headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59648	C59648	Neck pain stiffness without headache frequency category	Category that describes how frequently the headache associated symptom of neck pain/stiffness affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59608	C59608	Headache post traumatic prior history indicator	Indicator of whether the participant/subject experienced previous post traumatic headaches	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59656	C59656	Headache category other text	The free-text field related to 'Headache category' specifying other text	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59616	C59616	Headache day since onset count	Count of days passed since participant's/subject's onset of post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59624	C59624	Headache after traumatic brain injury intensity change category	Category which represents headache intensity since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59632	C59632	Headache maximum pain intensity scale	Rating scale of the maximum headache pain intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59641	C59641	Headache aura occurrence indicator	Indicator of whether the participant/subject has an aura occur with headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59649	C59649	Dizziness vertigo without headache frequency category	Category that describes how frequently the headache associated symptom of dizziness and/or vertigo affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59609	C59609	Headache post traumatic prior history time unit count	Number of days, months or years the participant/subject suffered from post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59657	C59657	Headache type family history indicator	Indicator as to whether the participant/subject has a family history of diagnosed headache type	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59617	C59617	Headache less than 30 day ratio value	Value which represents the headache ratio calculation. Value calculated by dividing the response from Q (a) by Q (b) and multiplying by 100. Applies only to patients that have had post traumatic headache for less than 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59625	C59625	Week month code	Ordinal week code for the weeks in a single month	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59633	C59633	Headache current pain scale	Scale for the current pain of this headache on a scale of 0-10	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59642	C59642	Headache aura symptom type frequency category	Category that describes how the aura symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59650	C59650	Gait postural imbalance without headache frequency category	Category that describes how frequently the headache associated symptom of gait and/or postural imbalance affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59610	C59610	Headache post traumatic prior history unit of measure	Unit of measure for the number of days, months or years the participant/subject suffered from post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59658	C59658	Relative biological first degree diagnosis headache history indicator	Indicator of whether first-degree biological relatives of the participant/subject has a history of diagnosed headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59618	C59618	Headache mild average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with mild severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59626	C59626	Headache days per week count	Count of days the participant/subject experienced headaches in a week	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59634	C59634	Headache worse with neck movement indicator	Indicator of whether the subject's/participant's headaches worsen with neck movements	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.