CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	General (For all diseases)	General (For all diseases)
F1053-C10592	C10592	Imaging flow compensation indicator	Indicator of whether flow compensation was used in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2052-C20729	C20729	Quality of Life - Overwhelm life assessment past week scale	The scale which represents how often the participant found that things in life were overwhelming in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F2654-C56518	C56518	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain restrict social life home scale	Scale related to how often an individual's pain restrict his/her social life to his/her home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.1 - Pain Interference	False	General (For all diseases)	General (For all diseases)
F1062-C12728	C12728	Needle electromyography electrode type	Type of electrode used for the needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2057-C21309	C21309	Quality of Life - Stigma illness people ignore good input recent assessment scale	The scale representing how often people tended to ignore the participant's good points because of their illness lately, as part of Neuro-QOL Stigma	Supplemental	Neuro-QOL Adult Bank - Stigma	True	General (For all diseases)	General (For all diseases)
F0039-C04506	C04506	ECG right ventricular hypertrophy status	Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F2050-C21201	C21201	Quality of Life - Plan keep appointment not weekly routine difficulty scale	The scale which represents the amount of difficulty the participant currently has in planning for and keeping appointments that are not part of their weekly routine (e.g., a therapy or doctor appointment, or a social gathering with friends and family), as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0010-C00712	C00712	Subscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0004-C20414	C20414	Investigator assessment intervention withdrawal specify text	The free-text field to specify the details of the withdrawal of study intervention that might have caused the serious adverse event	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F0005-C21122	C21122	Subject home phone number	The home phone number of the subject/participant	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F2061-C20685	C20685	Patient-Reported Outcome Measure Information System (PROMIS) - Item completed count	The count of items on the PROMIS form completed by the participant, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS - Scoring	False	General (For all diseases)	General (For all diseases)
F2052-C21231	C21231	Quality of Life - Everything extra effort complete past week scale	The scale representing how often the participant felt that everything they did was an effort in the past 7 days, as part of Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F2662-C56587	C56587	PROMIS - Pain Behavior lay down scale	Scale related to the individual laying down in the past 7 days, as part of the PROMIS Pain Behavior	Supplemental	PROMIS Pediatric Item Bank v1.0 - Pain Behavior-Short Form 8a	False	General (For all diseases)	General (For all diseases)
F1062-C12736	C12736	Needle electromyography motor unit action potential activation type	The activation of the motor unit action potential measure during needle electromyography	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21127	C21127	Quality of Life - Movement turn key lock ability scale	The scale which represents the extent to which the participant was able to turn a key in a lock, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcomes Measurement Information System (PROMIS) Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F0039-C04514	C04514	ECG T wave abnormality status	Status of an abnormal T wave on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	General (For all diseases)	General (For all diseases)
F2050-C21209	C21209	Quality of Life - Almost remember word past week scale	The scale representing how often words the participant wanted to use seemed to be on the "tip of their tongue" in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12693	C12693	Electrophysiology H-reflex nerve segment name	The nerve segment used for the H-reflex test	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0026-C01523	C01523	Head circumference unit of measure	Unit of measure for the head circumference numerical value	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0011-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Family History	False	General (For all diseases)	General (For all diseases)
F0008-C21112	C21112	Visit form name	Name of the form used during the visit	Supplemental	Visit Schedule	False	General (For all diseases)	General (For all diseases)
F2067-C20744	C20744	Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale	The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Social Activity	True	General (For all diseases)	General (For all diseases)
F2053-C21239	C21239	Quality of Life - Movement no handrail stair climb difficulty scale	The scale which represents the amount of difficulty the participant currently has in climbing stairs step over step without a handrail (alternating feet), as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.