CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 869
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C20769 Patient-Reported Outcome Measurement Information System (PROMIS) - Dependability assistance ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C20697 Quality of Life - Hope loss assessment past week scale

The scale which represents how often the participant wanted to give up on everything in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C21197 Quality of Life - Shyness assessment past week scale

The scale which represents how often the patient felt shy in the past 7 days, as part of Neuro-QOL Anxiety

Supplemental Neuro-QOL Adult Bank - Anxiety General (For all diseases) General (For all diseases)
C21172 Quality of Life - Social activity outside home limit complete past week scale

The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C56478 PROMIS - Pain Behavior when pain wince scale

Scale related to the individual feeling as if when in pain he/she winced in the past 7 days, as part of the PROMIS Pain Behavior

Supplemental PROMIS Item Bank v1.1 - Pain Behavior General (For all diseases) General (For all diseases)
C59688 COVID-19 first date not applicable status

Status denoting that the date the participant/subject was first told or first thought that they had coronavirus disease 2019 (COVID-19) is not applicable

Supplemental Medical History General (For all diseases) General (For all diseases)
C54694 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale

Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health

Supplemental PROMIS Item Bank v1.2 - Global Health General (For all diseases) General (For all diseases)
C20735 Quality of Life - Nothing interest assessment past week scale

The scale which represents how often the participant felt that nothing was interesting in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression

Supplemental Neuro-QOL Adult Bank - Depression General (For all diseases) General (For all diseases)
C21205 Quality of Life - Remember object location difficulty scale

The scale which represents the amount of difficulty the participant currently has in remembering where things were placed or put away (e.g., keys), as part of Neuro-QOL Cognitive Function

Supplemental Neuro-QOL Adult Bank - Cognitive Function General (For all diseases) General (For all diseases)
C21180 Quality of Life - Work usual abililty complete past week scale

The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA

Supplemental Neuro-QOL Adult Bank - Ability to Participate in SRA General (For all diseases) General (For all diseases)
C56486 Patient-Reported Outcome Measurement Information System (PROMIS) - Pain interference day to day activity scale

Scale which represents how much the participant felt pain interfered with day to day activities over the past seven days as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.1 - Pain Interference General (For all diseases) General (For all diseases)
C21109 Visit assessment complete type

Type of assessment completed during visit

Supplemental Visit Checklist General (For all diseases) General (For all diseases)
C20743 Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C21134 Quality of Life - Movement shampoo hair ability scale

The scale which represents the extent to which the participant was able to shampoo their hair, as part of Neuro-QOL Upper Extremity and Patient-Reported Outcome Measurement Information System (PROMIS) Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C21286 Quality of Life - Work ability satisfication past week scale

The scale which represents the extent to which the participant was satisfied with their ability to work in the past 7 days, as part of Neuro-QOL Satisfaction with SRA

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C18703 Imaging parallel acquisition used other text

The free-text field related to 'Imaging parallel acquisition used type' specifying other text. Type of the parallel acquisition method used in imaging acquisition

Supplemental Diffusion Tensor Imaging (DTI) General (For all diseases) General (For all diseases)
C20744 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C20751 Patient-Reported Outcome Measurement Information System (PROMIS) - Home fun ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C18659 Unexpected adverse event indicator

The indicator of whether the adverse event is unexpected

Supplemental Serious Adverse Events General (For all diseases) General (For all diseases)
C21142 Quality of Life - Movement pull trouser on ability scale

The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity

Supplemental Neuro-QOL Adult Bank - Upper Extremity General (For all diseases) General (For all diseases)
C21291 Quality of Life - Cancel friend activity bad sleep past week scale

The scale representing how often the participant avoided or cancelled activities with their friends because they were tired from having a bad night's sleep in the past 7 days, as part of Neuro-QOL Sleep Disturbance

Supplemental Neuro-QOL Adult Bank - Sleep Disturbance General (For all diseases) General (For all diseases)
C20753 Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental Neuro-QOL Adult Bank - Satisfaction with SRA General (For all diseases) General (For all diseases)
C20759 Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale

The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)

Supplemental PROMIS Item Bank v1.0 - Social Activity General (For all diseases) General (For all diseases)
C20548 Quality of Life in Neurological Disorders (Neuro-Qol) - No household chore fatigue assessment past week scale

The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)

Supplemental Neuro-QOL Adult Bank - Fatigue General (For all diseases) General (For all diseases)
C21299 Quality of Life - Stigma illness unkind treatment recent assessment scale

The scale representing how often people were unkind to the participant because of their illness lately, as part of Neuro-QOL Stigma

Supplemental Neuro-QOL Adult Bank - Stigma General (For all diseases) General (For all diseases)
Displaying 101 - 125 of 869

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.