CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 26 - 50 of 869

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2053-C21322	C21322	Quality of Life - Movement errand shop ability scale	The scale which represents the extent to which the participant was able to run errands and shop, as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F0004-C18659	C18659	Unexpected adverse event indicator	The indicator of whether the adverse event is unexpected	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F1062-C12754	C12754	Electrophysiology mean circular result	The mean circular result (MCR) measured during autonomic function testing	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2058-C21142	C21142	Quality of Life - Movement pull trouser on ability scale	The scale which represents the extent to which the participant was able to pull on trousers, as part of Neuro-QOL Upper Extremity	Supplemental	Neuro-QOL Adult Bank - Upper Extremity	True	General (For all diseases)	General (For all diseases)
F1053-C08241	C08241	Imaging field of view axis 1 measurement	Measurement of axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2050-C21224	C21224	Quality of Life - Trouble make decision past week scale	The scale representing how often the participant had trouble making decisions in the past 7 days, as part of Neuro-QOL Cognitive Function	Supplemental	Neuro-QOL Adult Bank - Cognitive Function	True	General (For all diseases)	General (For all diseases)
F1062-C12710	C12710	Electrophysiology assessment date and time	Date the particular electrophysiology study was performed	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0010-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0037-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	General (For all diseases)	General (For all diseases)
F0003-C18496	C18496	Screening visit not enrolled primary reason	The primary reason to indicate why the potential participant/subject is not enrolled in a study during a screening visit	Supplemental	Screening Log	False	General (For all diseases)	General (For all diseases)
F2067-C20759	C20759	Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale	The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.0 - Social Activity	True	General (For all diseases)	General (For all diseases)
F2053-C21330	C21330	Quality of Life - Movement uneven surface walk difficulty scale	The scale which represents the amount of difficulty the participant currently has in walking on uneven surfaces (e.g., grass, dirt road or sidewalk), as part of Neuro-QOL Lower Extremity Function	Supplemental	Neuro-QOL Adult Bank - Lower Extremity Function	True	General (For all diseases)	General (For all diseases)
F0004-C20397	C20397	Serious adverse event relevant history text	The text that describes relevant history including pre-existing medical conditions	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F1062-C12762	C12762	Electrophysiology quantitative sweat function foot measurement	The amount of sweat collected on the foot	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2059-C20548	C20548	Quality of Life in Neurological Disorders (Neuro-Qol) - No household chore fatigue assessment past week scale	The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)
F1053-C10577	C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental	Diffusion Tensor Imaging (DTI)	False	General (For all diseases)	General (For all diseases)
F2052-C20691	C20691	Quality of Life - Nothing interest future assessment past week scale	The scale which represents how often the participant felt that he/she had nothing to look forward to in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression	Supplemental	Neuro-QOL Adult Bank - Depression	True	General (For all diseases)	General (For all diseases)
F2654-C56509	C56509	Patient-Reported Outcome Measurement Information System (PROMIS) - Pain Interference pain make anxious scale	Scale related to how often pain made an individual feel anxious in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	Supplemental	PROMIS Item Bank v1.1 - Pain Interference	False	General (For all diseases)	General (For all diseases)
F1062-C12719	C12719	Electrophysiology repetitive nerve stimulation study preactivation amplitude measurement	Measurement, in mV, of the amplitude of the preactivation being described for the repetitive nerve study being recorded	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F0010-C00709	C00709	Tobacco cigarettes smoked daily average number	Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)	Supplemental	Behavioral History	False	General (For all diseases)	General (For all diseases)
F0038-C02212	C02212	Informed consent obtained date and time	Date (and time, if applicable and known) on which the participant/subject (or the legal representative on behalf of the participant/subject) agrees to participate in a protocol, treatment, or other activity by signing an informed consent document	Supplemental	Informed Consent and Enrollment	False	General (For all diseases)	General (For all diseases)
F0005-C21119	C21119	Subject home city name	Name of city in which the subject/participant lives	Supplemental	Participant/Subject Contact Information	False	General (For all diseases)	General (For all diseases)
F0004-C20405	C20405	Serious adverse events anticipated indicator	Indicate whether the adverse event was anticipated	Supplemental	Serious Adverse Events	False	General (For all diseases)	General (For all diseases)
F1062-C12770	C12770	Electrophysiology long pre-exercise compound muscle action potential measurement	Compound muscle action potential (CMAP) measurement recorded pre- long exercise	Supplemental	Electrophysiology	False	General (For all diseases)	General (For all diseases)
F2059-C20566	C20566	Quality of Life in Neurological Disorders (Neuro-Qol) - Difficulty finish task fatigue assessment past week scale	The scale representing how often the participant had trouble finishing things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol)	Supplemental	Neuro-QOL Adult Bank - Fatigue	False	General (For all diseases)	General (For all diseases)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.