CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58764 Left ventricular relative wall thickness value

Value of the relative wall thickness of the left ventricular wall, calculated as two multiplied by the left ventricular end-diastolic posterior wall thickness (PWTd) divided by the left ventricular end-diastolic internal dimension (LVIDd)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58772 Tissue Doppler lateral tricuspid annulus peak early diastolic velocity measurement

Measurement of the velocity of the tissue doppler lateral tricuspid annulus peak early diastolic (Rv e')

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58693 Cardiac implant device place indicator

Indicator of whether a cardiac implant device was placed

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C58713 Lab test sample type text

Text field for identifying the type of sample collected

Supplemental-Highly Recommended Laboratory Tests Friedreich's Ataxia Friedreich's Ataxia
C58697 Cardiac magnetic resonance left ventricular end diastolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58705 Cardiac magnetic resonance right ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging right ventricular end systolic volume (RVESV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58689 Chest discomfort cardiac cause history indicator

Indicator of whether the patient has a history of chest discomfort that is suggestive of a cardiac cause

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58683 Echocardiogram performed circumstance indicator

Circumstances under which this echocardiogram was performed should be indicated as either normal screening, changes in symptoms, provoked event, unknown or other. If there is another reason, specify the circumstance

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58765 Echocardiogram left ventricle mass index value

Left ventricle mass index (LVMI) measurement –Record the value as an integer with no decimal place in grams/m2 (g/m2). Calculated variable (LVM/BSA)

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58773 Tissue Doppler lateral tricuspid annual late diastolic velocity measurement

Measurement of the annual late diastolic velocity of the tissue doppler lateral tricuspid annulus (Rv a')

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C58694 Cardiac implant device location anatomic site

Anatomic site of the cardiac implant device

Supplemental Holter Exam Friedreich's Ataxia Friedreich's Ataxia
C58698 Cardiac magnetic resonance left ventricular end systolic volume integer

Integer for the value of the cardiac magnetic resonance imaging left ventricular end systolic volume (LVESV) in milliliters

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58706 Cardiac magnetic resonance right ventricular stroke volume integer

Integer for the value in milliliters of the stroke volume of the right ventricle (RVSV) as determined through cardiac magnetic resonance

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C58690 Syncope history indicator

Indicator of whether the patient has a history of syncope

Core Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C58677 Gender identity type

Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text. Self-reported phenotypic sex of participant, assigned at birth

Supplemental General Core Friedreich's Ataxia Friedreich's Ataxia
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth

Supplemental General Core Friedreich's Ataxia Friedreich's Ataxia
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant, assigned at birth

Core General Core Friedreich's Ataxia Friedreich's Ataxia
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

Exploratory Prenatal and Perinatal History Friedreich's Ataxia Friedreich's Ataxia
C18670 Subscribed drug or substance illicitly used category other text

The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Behavioral History Friedreich's Ataxia Friedreich's Ataxia
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Physical Examination Friedreich's Ataxia Friedreich's Ataxia
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Friedreich's Ataxia Friedreich's Ataxia
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Friedreich's Ataxia Friedreich's Ataxia
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

Supplemental Prior and Concomitant Medications Friedreich's Ataxia Friedreich's Ataxia
Displaying 51 - 75 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.