CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0934-C58696	C58696	Cardiac magnetic resonance left ventricular mass index integer	Integer representing the cardiac magnetic resonance imaging left ventricular mass index	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58704	C58704	Cardiac magnetic resonance right ventricular end diastolic volume integer	Integer for the value of the cardiac magnetic resonance imaging right ventricular end diastolic volume (RVEDV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C18619	C18619	Delayed motor milestone specify text	Specify in text the motor milestones that are were delayed	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58688	C58688	Heart symptomatic arrhythmias ventricular origin history indicator	Indicator of whether the patient has a history of symptomatic arryhtmias documented to be of ventricular origin	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C58712	C58712	Lab test method used type	Text field identifying the lab test method used	Supplemental-Highly Recommended	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58764	C58764	Left ventricular relative wall thickness value	Value of the relative wall thickness of the left ventricular wall, calculated as two multiplied by the left ventricular end-diastolic posterior wall thickness (PWTd) divided by the left ventricular end-diastolic internal dimension (LVIDd)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58772	C58772	Tissue Doppler lateral tricuspid annulus peak early diastolic velocity measurement	Measurement of the velocity of the tissue doppler lateral tricuspid annulus peak early diastolic (Rv e')	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C58693	C58693	Cardiac implant device place indicator	Indicator of whether a cardiac implant device was placed	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C22800	C22800	Pregnancy or delivery risk factor other indicator	Indicate whether there are other pregnancy/delivery risk factors	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58697	C58697	Cardiac magnetic resonance left ventricular end diastolic volume integer	Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58705	C58705	Cardiac magnetic resonance right ventricular end systolic volume integer	Integer for the value of the cardiac magnetic resonance imaging right ventricular end systolic volume (RVESV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F0925-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Exploratory	Pediatric Developmental History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C58689	C58689	Chest discomfort cardiac cause history indicator	Indicator of whether the patient has a history of chest discomfort that is suggestive of a cardiac cause	Core	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F0931-C58713	C58713	Lab test sample type text	Text field for identifying the type of sample collected	Supplemental-Highly Recommended	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58765	C58765	Echocardiogram left ventricle mass index value	Left ventricle mass index (LVMI) measurement –Record the value as an integer with no decimal place in grams/m2 (g/m2). Calculated variable (LVM/BSA)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58773	C58773	Tissue Doppler lateral tricuspid annual late diastolic velocity measurement	Measurement of the annual late diastolic velocity of the tissue doppler lateral tricuspid annulus (Rv a')	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C58694	C58694	Cardiac implant device location anatomic site	Anatomic site of the cardiac implant device	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58683	C58683	Echocardiogram performed circumstance indicator	Circumstances under which this echocardiogram was performed should be indicated as either normal screening, changes in symptoms, provoked event, unknown or other. If there is another reason, specify the circumstance	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0923-C59019	C59019	Birth weight measurement	Measurement in kilograms of the weight of a neonate at birth	Exploratory	Prenatal and Perinatal History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0922-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0922-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0929-C18666	C18666	Body system category other text	The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Physical Examination	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.