CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10696 Personal hygiene level status

Status that reflects the participant's/subject's current level of personal hygiene

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10705 Walking difficulty age interfered with activities value

Age of participant/subject when difficulty with walking interfered with activities

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10771 Echocardiogram left ventricular end - systolic internal dimension z score

Calculated z-score for the left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

Exploratory History Data Source and Reliability Friedreich's Ataxia Friedreich's Ataxia
C10760 ECG LVH voltage criteria met indicator

Whether voltage criteria for left ventricular hypertrophy (LVH) (any of the following: R or S in limb leads = 20 mm; S in V1 or V2 =30mm; R in V5 or V6 = 30 mm) were met as assessed by electrocardiography (ECG)

Supplemental Electrocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10721 Walking other assistive device use age started value

Age of the participant/subject when he/she began using the other assistive device for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10503 Neonatal problems indicator

Whether the participant/subject has a history of problems as an infant during the first month after birth

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11086 School placement type

The description of the type of education the participant/subject receives with details of being with or without assistance

Exploratory Pediatric Developmental History Friedreich's Ataxia Friedreich's Ataxia
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C10511 Genetic diagnosis established in country name

Country where the clinical laboratory that performed the genetic testing is located

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

Exploratory Bowel Control Scale (BWCS) Friedreich's Ataxia Friedreich's Ataxia
C10520 Vision affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's vision

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10697 Fall rate

Rate that reflects the participant's/subject's current frequency of falling

Supplemental-Highly Recommended Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C59007 American Heart Association heart failure stage classification status

Status of the participant's/subject's stage heart failure according to the American Heart Association (AHA) Stage of Heart Failure classifications

Supplemental Cardiac End Points Friedreich's Ataxia Friedreich's Ataxia
C10604 Cardiac MRI relative wall thickness measurement

The relative wall thickness measured by cardiac Magnetic Resonance Imaging

Supplemental Cardiac Magnetic Resonance Imaging Friedreich's Ataxia Friedreich's Ataxia
C10723 Echocardiogram completed indicator

Whether an echocardiogram was performed on the participant/subject

Supplemental Echocardiogram Friedreich's Ataxia Friedreich's Ataxia
C10676 Country of residence code

Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

Exploratory Demographics Friedreich's Ataxia Friedreich's Ataxia
C10521 Hearing affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's hearing

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C10698 Walking ability status

Status that reflects the participant's/subject's current ability to walk

Core Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10706 Walking difficulty age support first needed value

Age of participant/subject when intermittent support first needed for walking

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10714 Walker use indicator

Indicator whether the participant/subject uses a walker

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10722 Walking primary assistive device daily use duration

Duration for which the participant/subject uses her or his primary assistive walking device on a daily basis

Supplemental Activities of Daily Living and Gait Friedreich's Ataxia Friedreich's Ataxia
C10504 Impaired physical ability during infancy indicator

Whether the participant/subject has a history of impaired physical abilities during infancy

Supplemental Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
C11516 Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity

The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS)

Exploratory Bladder Control Scale (BLCS) Friedreich's Ataxia Friedreich's Ataxia
C10512 Friedreich's ataxia length of GAA repeat allele 1 measurement

The length of the GAA trinucleotide repeat on allele 1 found through genetic testing

Core Medical History of Friedreich's Ataxia Friedreich's Ataxia Friedreich's Ataxia
Displaying 76 - 100 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.