CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 447
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C11514 Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale

The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Friedreich's Ataxia Friedreich's Ataxia
C10510 Genetic diagnosis established in city name

City where the clinical laboratory that performed the genetic testing is located

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C11522 Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale

Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C10518 Scoliosis last assessment date and time

Date (and time if applicable and known) the participant/subject was last assessed for scoliosis

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10696 Personal hygiene level status

Status that reflects the participant's/subject's current level of personal hygiene

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10704 Walking difficulty age others noticed value

Age when other people first noticed the participant's/subject's gait disturbances

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10770 Echocardiogram left ventricular end diastolic internal dimension z score

Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C10712 Walking use 2 cane crutch indicator

Indicator whether the participant/subject uses two canes or crutches for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C11133 History data not obtained reason

Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)

 Exploratory History Data Source and Reliability False Friedreich's Ataxia Friedreich's Ataxia
C10759 ECG premature ventricular contractions status

Status of absence or presence for an electrocardiographic finding of premature ventricular contractions (PVCs)

 Supplemental Electrocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C10720 Walking other assistive device use indicator

Indicator whether the participant/subject uses any other assistive device for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10679 Paid assistance per day hours number

How many hours in a typical 24-hour day do you have someone with you [paid assistance] to provide physical assistance for personal care activities such as eating, bathing, dressing, toileting and mobility?

 Supplemental Social Status False Friedreich's Ataxia Friedreich's Ataxia
C10543 Cancer head or neck radiation treatment indicator

Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation

 Supplemental Medical History False Friedreich's Ataxia Friedreich's Ataxia
C18806 Country of residence other text

The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives

 Exploratory Demographics False Friedreich's Ataxia Friedreich's Ataxia
C11515 Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale

The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS)

 Exploratory Bladder Control Scale (BLCS) False Friedreich's Ataxia Friedreich's Ataxia
C10511 Genetic diagnosis established in country name

Country where the clinical laboratory that performed the genetic testing is located

 Core Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C11523 Bowel Control Scale (BWCS) - sum score value

Sum of the score for questions in the Bowel Control Scale (BWCS)

 Exploratory Bowel Control Scale (BWCS) False Friedreich's Ataxia Friedreich's Ataxia
C10520 Vision affected by disease indicator

The indicator of whether the disease/disorder has affected the participant's/subject's vision

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
C10697 Fall rate

Rate that reflects the participant's/subject's current frequency of falling

 Supplemental-Highly Recommended Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10705 Walking difficulty age interfered with activities value

Age of participant/subject when difficulty with walking interfered with activities

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10771 Echocardiogram left ventricular end - systolic internal dimension z score

Calculated z-score for the left ventricular end - systolic internal dimension (LVIDs) measured with echocardiography

 Supplemental Echocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C11134 History data reliability type

Overall assessment of the reliability of the medical/family history data obtained

 Exploratory History Data Source and Reliability False Friedreich's Ataxia Friedreich's Ataxia
C10760 ECG LVH voltage criteria met indicator

Whether voltage criteria for left ventricular hypertrophy (LVH) (any of the following: R or S in limb leads = 20 mm; S in V1 or V2 =30mm; R in V5 or V6 = 30 mm) were met as assessed by electrocardiography (ECG)

 Supplemental Electrocardiogram False Friedreich's Ataxia Friedreich's Ataxia
C10721 Walking other assistive device use age started value

Age of the participant/subject when he/she began using the other assistive device for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10503 Neonatal problems indicator

Whether the participant/subject has a history of problems as an infant during the first month after birth

 Supplemental Medical History of Friedreich's Ataxia False Friedreich's Ataxia Friedreich's Ataxia
Displaying 51 - 75 of 447

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.