CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 447

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0931-C10896	C10896	Pregnancy test performed indicator	Indicator as to whether or not a pregnancy test was performed on the participant/subject	Supplemental-Highly Recommended	Laboratory Tests	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10718	C10718	Wheelchair use indicator	Indicator whether the participant/subject uses a wheelchair	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58764	C58764	Left ventricular relative wall thickness value	Value of the relative wall thickness of the left ventricular wall, calculated as two multiplied by the left ventricular end-diastolic posterior wall thickness (PWTd) divided by the left ventricular end-diastolic internal dimension (LVIDd)	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0938-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Prior and Concomitant Medications	False	Friedreich's Ataxia	Friedreich's Ataxia
F0924-C10558	C10558	Delivery or pregnancy termination last date and time	Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)	Supplemental	Pregnancy History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C58772	C58772	Tissue Doppler lateral tricuspid annulus peak early diastolic velocity measurement	Measurement of the velocity of the tissue doppler lateral tricuspid annulus peak early diastolic (Rv e')	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C10873	C10873	Holter exam start date and time	Date (and time, if applicable and known) the Holter examination began	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10516	C10516	Scoliosis maximum spine curvature measurement	The maximum curvature of the spine in degrees for a participant/subject who has been diagnosed with scoliosis	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0953-C10607	C10607	Hospitalization past year count	Count of all hospitalizations the participant/subject had within the past year	Supplemental	Cardiac End Points	False	Friedreich's Ataxia	Friedreich's Ataxia
F2850-C58693	C58693	Cardiac implant device place indicator	Indicator of whether a cardiac implant device was placed	Supplemental	Holter Exam	False	Friedreich's Ataxia	Friedreich's Ataxia
F0928-C10526	C10526	Assistive walking device started use age value	Age when the participant/subject began using the assistive walking device	Supplemental	Medical History of Friedreich's Ataxia	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10702	C10702	Walking own unable reason	Reason why the participant/subject is unable to walk on his/her own	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C10768	C10768	Echocardiogram left ventricular end-diastolic posterior wall thickness z score	Calculated z-score for the left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0940-C10710	C10710	Walking 1 cane use indicator	Indicator whether the participant/subject uses one cane for walking	Supplemental	Activities of Daily Living and Gait	False	Friedreich's Ataxia	Friedreich's Ataxia
F2825-C54235	C54235	Echocardiogram right ventricular posterior wall thickness end diastole measurement	Measurement of right ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F0926-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Friedreich's Ataxia	Friedreich's Ataxia
F0935-C10757	C10757	ECG paroxysmal supraventricular tachycardia status	Status of presence or absence for an electrocardiographic finding of paroxysmal supraventricular tachycardia (PSVT)	Supplemental	Electrocardiogram	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C11928	C11928	Modified Fatigue Impact Scale (MFIS) - limit physical activity score	Scale for having limited physical activities as part of Modified Fatigue Impact Scale form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C11993	C11993	Timed 25-Foot Walk (T25FW) - bilateral assistance device type	Type of assistive device used by the participant/subject during the assessment, as part of the Timed 25-Foot Walk (T25FW)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0921-C17472	C17472	Cardiovascular history arrhythmia ventricular tachycardia indicator	Indicator as to whether the participant/subject has or had a cardiac arrhythmia in the form of ventricular tachycardia	Supplemental	Medical History	False	Friedreich's Ataxia	Friedreich's Ataxia
F2746-C17826	C17826	Modified Fatigue Impact Scale-5-Item Version (MFIS-5) - limited ability away home scale	Scale for having been limited in the ability to do things away from home as part of Modified Fatigue Impact Scale 5-Item Version (MFIS-5) form	Supplemental	Modified Fatigue Impact Scale (MFIS)	False	Friedreich's Ataxia	Friedreich's Ataxia
F0934-C58697	C58697	Cardiac magnetic resonance left ventricular end diastolic volume integer	Integer for the value of the cardiac magnetic resonance imaging left ventricular end diastolic volume (LVEDV) in milliliters	Supplemental	Cardiac Magnetic Resonance Imaging	False	Friedreich's Ataxia	Friedreich's Ataxia
F1027-C12002	C12002	Timed 25-Foot Walk (T25FW) - more than two attempts text	Text specification of reason(s) for attempting more than two trials, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)	Supplemental	Timed 25-Foot Walk (T25-FW)	False	Friedreich's Ataxia	Friedreich's Ataxia

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.