CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1906-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Core	Prior and Concomitant Medications	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1879-C12671	C12671	Surgery lifetime total count	Total number of surgeries the participant/subject has undergone in his/her lifetime	Core	Surgical History	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1833-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Core	Social Status	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12229	C12229	Tissue specimen size measurement	Measurement of the size of the tissue specimen collected	Core	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1823-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1908-C12230	C12230	Tissue specimen collection date and time	Date (and time if applicable and known) when the tissue specimen was collected	Core	Muscle Biopsies and Autopsy Tissue	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1857-C12839	C12839	Cardiac MRI ventricle end diastolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)	Exploratory	Cardiac Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12866	C12866	Echocardiogram left atrial area measurement	Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1857-C12847	C12847	Cardiac MRI left ventricle mass index measurement	Measurement of the left ventricle mass as obtained by cardiac magnetic resonance imaging (MRI) divided by the participant's body surface area in square meters	Exploratory	Cardiac Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12874	C12874	Echocardiogram pulmonic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1857-C12857	C12857	Cardiac MRI myocardial scar segment anatomic site	Anatomic site or segment of the heart where myocardial scarring was observed on the cardiac magnetic resonance imaging (MRI)	Exploratory	Cardiac Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12882	C12882	Echocardiogram velocity of circumferential shortening value	Velocity of circumferential shortening (VcF) measured using echocardiography. VcF is an index of myocardial performance	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1857-C17929	C17929	Cardiac MRI overall impression text	Free-text field describing the overall impression of the cardiac magnetic resonance imaging (MRI) being reported	Exploratory	Cardiac Magnetic Resonance Imaging (MRI)	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)
F1859-C12890	C12890	Echocardiogram left ventricle function status	Status of left ventricle function on the echocardiogram	Exploratory	Echocardiogram	False	Congenital Muscular Dystrophy	Congenital Muscular Dystrophy (CMD)

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.