CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22524 Surgical procedure complication pseudomeningocele type

Type of pseudomeningocele found in the patient's brain, if any

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21744 Imaging posterior cranial fossa basion dens interval extension measurement

The measurement as related to distance from basion to tip of odontoid in extension

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21844 Headache assessment total score

The total score of headache assessment

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22418 Birth delivery forceps use indicator

The indicator related to birth presentation at delivery requiring the use of forceps

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C21780 Headache primary laterality anatomic site

The location related to the lateral site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22031 Motor strength testing right triceps scale

The amount of movement in the right triceps muscle

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21681 Allergy reaction acrylic indicator

Indicator related to allergic reaction to acrylic

Exploratory Allergy Chiari I Malformation Chiari I Malformation
C56967 Tinels sign positive side type

The side of the body that the participant/subject's Tinel's signs read positive

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22435 Medical history valvular stenosis indicator

The indicator related to any medical history of valvular stenosis, in which there is narrowing, stiffening, thickening, fusion, or blockage of one or more of the valves in the subject's heart

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22039 Motor strength testing right quadricep scale

The amount of movement in the right quadricep

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56975 Adsons maneuver type

The type of Adson's maneuver seen in the participant/subject

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21842 Headache aggravating pain factor type

The type as related to factor aggravating headache pain

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22049 Motor strength testing right ankle pf scale

The amount of movement in the right ankle pf

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22100 Modified Ashworth Scale - Limb tone testing right hip scale

The scale of limb tone testing for the right hip, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56991 Toe walking type

Type of toe walking

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22419 Birth delivery Caesarian section indicator

The indicator related to birth presentation at delivery being a Caesarian section

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22549 Symptom general pain pre surgical procedure score

Score related to the symptom scale of the subject's general pain pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22301 Reflex pyramidal frontal release sign snout status

The response status as related to pyramidal/frontal release sign snout reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21753 Imaging spine anomaly other craniocervical present indicator

The indicator related to presence of other craniocervical abnormalities on the imaging spinal anomalies

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22427 Fetal alcohol syndrome condition indicator

The indicator related to the condition of fetal alcohol syndrome, which the group of signs and symptoms of birth defects caused by a woman drinking alcohol during pregnancy

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22557 Symptom weakness surgical procedure change score

Score related to the change in the subject's weakness scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22565 Symptom depression post surgical procedure score

Score related to the symptom scale of the subject's depression post-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21737 Imaging posterior cranial fossa soft tissue clivo-axial angle (CXA) measurement

The measurement as related to soft tissue clivo-axial angle (CXA)

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22411 Skin abnormality peizogenic papule indicator

The indicator related to evaluation of the presence of skin abnormality of peizogenic papule consistent with connective tissue disorders

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 101 - 125 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.