CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C22298 Reflex pyramidal frontal release sign glabellar status

The response status as related to pyramidal/frontal release sign glabellar reflex

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22226 Sensory abnormal stabbing pain indicator

The indicator related to abnormal stabbing pain

Supplemental Sensory Symptoms Chiari I Malformation Chiari I Malformation
C22437 Suboccipital craniectomy size superior inferior measurement

The measurement related to the size of the suboccipital craniectomy superiorly or inferiorly

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22030 Motor strength testing left iliopsoas scale

The amount of movement in the left iliopsoas

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22739 Extremity stiffness indicator

Indicator of whether the patient/participant has experienced stiffness in his or her extremities

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21707 Coordination finger to nose left upper extremity tap assessment scale

The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity) tap

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21923 Balance unsteady stand walk indicator

The indicator related to feelings of unsteadiness when standing or walking

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22357 Chiari malformation identify speciality diagnosis type

The type of specialty of the individual responsible for diagnosis

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21680 Allergy reaction latex indicator

Indicator related to allergic reaction to latex

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C22483 Chiari decompression verification decompression obex choroid plexus fourth ventricle indicator

The indicator related to the verification of decompression within the obex or the choroid plexus of the 4th ventricle

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56977 Trigger point type

Type of trigger points

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22575 Surgical procedure performed date

Date the surgical procedure was performed on the subject

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C01522 Height measurement

Measurement of participant's height

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21739 Imaging posterior cranial fossa pB-C2 measurement

The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22535 Shunt valve in place indicator

Shunt valve currenting in place

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22045 Motor strength testing fasciculation indicator

The indicator relating to fasciculations in a muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22302 Chiari malformation headache onset important symptom scale

The scale as related to headache at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21747 Imaging posterior cranial fossa supraoccipital length measurement

The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22543 Shunt valve functional assessment type

Shunt valve functional assessment type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21765 Chiari malformation screening dental development poor enamel temporomandibular joint problem indicator

The indicator related to having any developmental problems with teeth, poor dental enamel or temporomandibular joint disorder in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22176 Chiari malformation neurological examination alert orient indicator

The indicator related to patient being alert and oriented to person, place and time

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
Displaying 176 - 200 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.