CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C55654 Saccadic pursuit indicator

The indicator related to saccadic pursuit

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C55644 Neck Disability Index - sleeping indicator

The sleeping pain indicator of the subject/participant as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C55645 Neck Disability Index - recreation indicator

The recreation indicator of the subject/participant as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C55642 Neck Disability Index - work indicator

The work pain indicator of the subject/participant as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C55643 Neck Disability Index - driving indicator

The driving pain indicator of the subject/participant as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C55639 Neck Disability Index - reading indicator

The pain indicator of reading as it relates to the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C55638 Neck Disability Index - lifting indicator

The pain indicator of lifting as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C55637 Neck Disability Index - Personal care indicator

The pain indicator of personal care as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C55627 Neck Disability Index (NDI) - Pain intensity type

The element related to the intensity of the participant/subject's pain as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C55640 Neck Disability Index - headaches type

The element related to the type of headaches the participant/subject has as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C55641 Neck Disability Index - Concentration

The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22775 Hereditary disorder connective tissue diagnosis type

The type related to hereditary disorder of connective tissues

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22776 Hereditary disorder type

The type related to hereditary disorder of connective tissues

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22747 Current diarrhea indicator

Indicator of whether the patient/participant currently experiences diarrhea

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22755 Sexual dysfunction indicator

Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22715 Visual field reduced look straight ahead indicator

Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22763 Nipple discharge indicator

Indicator of whether the patient/participant is experiencing or exhibits discharge from one or both nipples

Exploratory Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22723 Throat tight indicator

Indicator of whether the patient/participant has throat tightness

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22771 Snoring indicator

Indicator of whether the patient/participant snores during sleep

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22731 Sensation loss extremities indicator

Indicator of whether the patient/participant has experienced a partial or complete loss of sensation in his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22739 Extremity stiffness indicator

Indicator of whether the patient/participant has experienced stiffness in his or her extremities

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22748 Occasional bowel incontinence current indicator

Indicator of whether the patient/participant currently experiences occasional bowel incontinence

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22756 Genital pelvic sensation loss indicator

Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22716 Ear pressure indicator

Indicator of whether the patient/participant has pressure in his or her ears

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22764 Joint hypermobility indicator

Indicator of whether the patient/participant is experiencing or exhibits hypermobility of one or more joints

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
Displaying 76 - 100 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.