CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2193-C55654	C55654	Saccadic pursuit indicator	The indicator related to saccadic pursuit	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2272-C55644	C55644	Neck Disability Index - sleeping indicator	The sleeping pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55645	C55645	Neck Disability Index - recreation indicator	The recreation indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55642	C55642	Neck Disability Index - work indicator	The work pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55643	C55643	Neck Disability Index - driving indicator	The driving pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55639	C55639	Neck Disability Index - reading indicator	The pain indicator of reading as it relates to the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55638	C55638	Neck Disability Index - lifting indicator	The pain indicator of lifting as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55637	C55637	Neck Disability Index - Personal care indicator	The pain indicator of personal care as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55627	C55627	Neck Disability Index (NDI) - Pain intensity type	The element related to the intensity of the participant/subject's pain as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55640	C55640	Neck Disability Index - headaches type	The element related to the type of headaches the participant/subject has as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2272-C55641	C55641	Neck Disability Index - Concentration	The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2146-C22775	C22775	Hereditary disorder connective tissue diagnosis type	The type related to hereditary disorder of connective tissues	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2146-C22776	C22776	Hereditary disorder type	The type related to hereditary disorder of connective tissues	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22747	C22747	Current diarrhea indicator	Indicator of whether the patient/participant currently experiences diarrhea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22755	C22755	Sexual dysfunction indicator	Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22715	C22715	Visual field reduced look straight ahead indicator	Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22763	C22763	Nipple discharge indicator	Indicator of whether the patient/participant is experiencing or exhibits discharge from one or both nipples	Exploratory	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22723	C22723	Throat tight indicator	Indicator of whether the patient/participant has throat tightness	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22771	C22771	Snoring indicator	Indicator of whether the patient/participant snores during sleep	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22731	C22731	Sensation loss extremities indicator	Indicator of whether the patient/participant has experienced a partial or complete loss of sensation in his or her extremities	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22739	C22739	Extremity stiffness indicator	Indicator of whether the patient/participant has experienced stiffness in his or her extremities	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22748	C22748	Occasional bowel incontinence current indicator	Indicator of whether the patient/participant currently experiences occasional bowel incontinence	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22756	C22756	Genital pelvic sensation loss indicator	Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22716	C22716	Ear pressure indicator	Indicator of whether the patient/participant has pressure in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22764	C22764	Joint hypermobility indicator	Indicator of whether the patient/participant is experiencing or exhibits hypermobility of one or more joints	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.