CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 76 - 100 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2172-C21747	C21747	Imaging posterior cranial fossa supraoccipital length measurement	The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21755	C21755	Imaging spine anomaly spinal dysraphism present indicator	In this context, we define spina bifida occulta as non-fusion of the posterior spinal elements without evidence of any other abnormality of the spinal cord or dura	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21731	C21731	Imaging cerebellar tonsil shape type	The type as related to the relative tonsil shape reported	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21739	C21739	Imaging posterior cranial fossa pB-C2 measurement	The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21748	C21748	Imaging posterior cranial fossa foramen magnum diameter measurement	The measurement as related to distance from basion to opisthion	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21756	C21756	Imaging other incidental finding text	The free-text field related to report of any additional incidental findings (e.g.- Meniongioma, arachnoid cyst, tumor, stroke)	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21732	C21732	Imaging syrinx present indicator	The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging	Supplemental-Highly Recommended	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21740	C21740	Imaging posterior cranial fossa basion axial interval measurement	The measurement as related to distance from tip of basion to posterior axial line	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21749	C21749	Imaging posterior cranial fossa superior posterior fossa length measurement	The measurement as related to distance from dorsum sella to internal occipital protuberance	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21757	C21757	Imaging hydrocephalus ventriculomegaly finding indicator	The indicator related to presence of hydrocephalus/ventriculomegaly	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21733	C21733	Imaging syrinx length spinal segment count	The number of spinal segments for length of syrinx as measure on sagittal MRI scan	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C21741	C21741	Imaging posterior cranial fossa basion axial interval extension measurement	The measurement as related to distance from tip of basion to posterior axial line while in extension	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2165-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C21714	C21714	Gag reflect status	Status as related to gag reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22262	C22262	Reflex deep tendon reflex finger flexor response score	The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22028	C22028	Motor strength testing right bicep scale	The amount of movement in the right bicep muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22036	C22036	Motor strength testing right wrist flexion scale	The amount of movement in the flexion of the right wrist muscles	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22046	C22046	Motor strength testing left hamstring scale	The amount of movement in the left hamstring	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22062	C22062	Modified Ashworth Scale - Limb tone testing left shoulder scale	The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22071	C22071	Modified Ashworth Scale - Limb tone testing right elbow scale	The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22106	C22106	Modified Ashworth Scale - Limb tone testing right ankle scale	The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C21715	C21715	Tongue function deviation assessment status	Status as related to tongue function deviation	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22264	C22264	Reflex deep tendon reflex patellar response score	The response score related to deep tendon reflex testing of patellar (femoral:l2-4)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22029	C22029	Motor strength testing left bicep scale	The amount of movement in the left bicep muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.