CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22526 Shunt valve type

Type of Shunt Valve

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22538 Shunt valve reservoir refill sit time

Shunt valve reservoir refill sitting time

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22527 Shunt valve other text

The free-text related to shunt valve; specifying other text

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22539 Shunt valve reservoir refill lying not collect reason

Reason the time to refill after compression with the subject/participant lying down was not collected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22529 Shunt valve surgical implantation date

Date of surgical implantation

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22540 Shunt valve reservoir resistance type

Resistance to reservoir compression

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22509 Shunt type

Shunt type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22531 Shunt valve surgical site status

Shunt valve surgical site status

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22541 Shunt valve reservoir refill lying duration

Time to refill after compression, with the subject/participant lying down

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21685 Beighton Score - Motion finger bend back score

Score/Assessment of Motion to bend finger back as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C21718 Cardiac arrhythmia finding text

The free-text field to explain the findings of the cardiac arrhythmia

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21719 Sixth cranial nerve palsy assessment status

Status as related to assessment of 6th cranial nerve palsy

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21720 Vertigo assessment indicator

Indicator as related to assessment of vertigo

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21713 Swallow function problem type

Type as related to problem with function of swallowing

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21722 Oculomotor saccadic pursuit assessment indicator

Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21714 Gag reflect status

Status as related to gag reflex

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21723 Coordination truncal instability assessment indicator

Indicator related to truncal instability or with a wide-based "drunken sailor" gait

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21715 Tongue function deviation assessment status

Status as related to tongue function deviation

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21724 Nausea vomit assessment status

The status as related to nausea and vomiting

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
Displaying 26 - 50 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.