CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22408 Cutaneous stigmata occult tethered spinal cord meningocele manque indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22480 Spinal cord tethered myelomeningocele indicator

The indicator related to having myelomeningocele as the condition of tethered spinal cord (low lying conus medullaris)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22450 Hydrocephalus family history aqueductal stenosis indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Chiari I Malformation Chiari I Malformation
C22409 Skin abnormality stretch mark indicator

The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22481 Spinal cord tethered thick filum indicator

The indicator related to having thickened filum as the condition of tethered spinal cord (low lying conus medullaris)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22451 Hydrocephalus family history ventricle variant indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically any ventricular variants, such as cavum septum pellucidum and cavum vergi

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Chiari I Malformation Chiari I Malformation
C21728 Imaging cerebellar tonsil lowest position measurement

The measurement related to lowest tonsillar position relative to foramen magnum

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22402 Hereditary disorder connective tissue diagnosis indicator

The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22410 Skin abnormality hyperextensiblilty indicator

The indicator related to evaluation of the presence of skin abnormality of hyperextensiblilty consistent with connective tissue disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22195 Base head pressure indicator

The indicator related to pressure at the base of head

Core Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22452 Klippel Feil Anomaly diagnosis indicator

The indicator related to the clinical diagnosis of Klippel Feil Anomaly, or fused cervical vertebrae

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core General Core Chiari I Malformation Chiari I Malformation
C22474 Medical history cerebrospinal fluid leak intracranial hypotension indicator

The indicator relating to any medical history of leak of cerebrospinal fluid (CSF) and/or intracranial hypotension

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C21729 Imaging cerebellar tonsil right position measurement

The measurement related to right tonsillar position relative to foramen magnum

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22403 Cutaneous stigmata occult tethered spinal cord hair tuft indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for hair tuft

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core Demographics Chiari I Malformation Chiari I Malformation
C22466 Medical history infectious disease central nervous system implication indicator

The indicator related to the history of an infectious disease with central nervous system (CNS) implications

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22558 Symptom cranial nerve pre surgical procedure score

Score related to the symptom scale of the subject's cranial nerves pre surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22566 Symptom depression surgical procedure change score

Score related to the change in the subject's depression scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21837 Headache duration type

The type as related to duration of headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21738 Imaging posterior cranial fossa bone clivo-axial angle (CXA) measurement

The measurement as related to bone clivo-axial angle (CXA)

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22412 Arachnodactyly presence indicator

The indicator for arachnodactyly ("spider fingers") or achromachia is a condition in which the fingers and toes are abnormally long and slender, in comparison to the palm of the hand and arch of the foot

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 26 - 50 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.