CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 26 - 50 of 901
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core General Core Chiari I Malformation Chiari I Malformation
C22450 Hydrocephalus family history aqueductal stenosis indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF).

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22407 Cutaneous stigmata occult thread spinal cord appendage indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage .

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22415 Chiari malformation family history indicator

The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders.

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22431 Neck injury unspecified indicator

The indicator relating to any unspecified neck injuries the subject has had.

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22399 Spina bifida diagnosis indicator

The indicator related to diagnosis of spina bifida

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C00035 Gender type

Self-reported gender of the participant/subject.

Core Demographics Chiari I Malformation Chiari I Malformation
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Chiari I Malformation Chiari I Malformation
C22479 Spinal cord tethered lipoma indicator

The indicator related to having lipoma as the condition of tethered spinal cord (low lying conus medullaris).

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22451 Hydrocephalus family history ventricle variant indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically any ventricular variants, such as cavum septum pellucidum and cavum vergi.

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22408 Cutaneous stigmata occult tethered spinal cord meningocele manque indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque .

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Chiari I Malformation Chiari I Malformation
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Chiari I Malformation Chiari I Malformation
C22480 Spinal cord tethered myelomeningocele indicator

The indicator related to having myelomeningocele as the condition of tethered spinal cord (low lying conus medullaris).

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C21728 Imaging cerebellar tonsil lowest position measurement

The measurement related to lowest tonsillar position relative to foramen magnum.

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22452 Klippel Feil Anomaly diagnosis indicator

The indicator related to the clinical diagnosis of Klippel Feil Anomaly, or fused cervical vertebrae.

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22409 Skin abnormality stretch mark indicator

The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22474 Medical history cerebrospinal fluid leak intracranial hypotension indicator

The indicator relating to any medical history of leak of cerebrospinal fluid (CSF) and/or intracranial hypotension.

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22195 Base head pressure indicator

The indicator related to pressure at the base of head.

Core Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21737 Imaging posterior cranial fossa soft tissue clivo-axial angle (CXA) measurement

The measurement as related to soft tissue clivo-axial angle (CXA).

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22048 Motor strength testing left ankle df scale

The amount of movement in the left ankle df.

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21745 Imaging posterior cranial basion dens axial interval flexion measurement

The measurement as related to distance from basion to tip of odontoid in flexion

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22099 Modified Ashworth Scale - Limb tone testing left elbow scale

The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale.

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22549 Symptom general pain pre surgical procedure score

Score related to the symptom scale of the subject's general pain pre-surgery.

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21753 Imaging spine anomaly other craniocervical present indicator

The indicator related to presence of other craniocervical abnormalities on the imaging spinal anomalies.

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
Displaying 26 - 50 of 901

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.