CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1 - 25 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0016-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Chiari I Malformation	Chiari I Malformation
F0016-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Chiari I Malformation	Chiari I Malformation
F0016-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F0016-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2172-C58516	C58516	Greatest transverse thecal sac diameter measurement	Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C58515	C58515	Greatest transverse spinal cord diameter measurement	Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C58514	C58514	Empty sella turcica present indicator	The indicator related to presence of empty sella turcica	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2194-C56996	C56996	Palpitation SI joint local pain text	Text field related to local pain within palpitation of SI joints	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56995	C56995	Sacroiliac joint dysfunction palpitation pain type	Type of palpitation in sacroiliac joint dysfunction pain	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56994	C56994	Spinal percussion local pain text	Text field related to the spinal percussion local pain	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56993	C56993	Spinal percussion type	Type of spinal percussion	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56992	C56992	Toe walking weakness type	Type of toe walking weakness	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56991	C56991	Toe walking type	Type of toe walking	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56990	C56990	Heel walking weakness type	Type of heel walking weakness	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56989	C56989	Heel walking type	Type of heel walking	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56988	C56988	Lumbar posture type	Type of lumbar posture	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56987	C56987	Trigger point rhomboid type	Type of rhomboid trigger point	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56986	C56986	Trigger point trapezius type	Type of trapezius trigger point	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56985	C56985	Stair climbing difficulty type	The difficulty the participant/subject has when climbing stairs	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56984	C56984	Range of motion at hip external side type	The hip that the participant/subject feels pain on during external range of motion	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56983	C56983	Range of motion at hip internal side type	The hip that the participant/subject feels pain on during internal range of motion	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.