CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 601 - 625 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19247 Subject ID

Subject identification ID

 Core Motor Development History False Cerebral Palsy Cerebral Palsy
C22884 Person obtained report type

The type indicating who the report was obtained by

 Supplemental Motor Development History False Cerebral Palsy Cerebral Palsy
C22886 Delay acquisition language communication milestone indicator

The indicator related to the subject having delayed acquisition of language or communication milestones, diagnosed be a physician

 Supplemental Motor Development History False Cerebral Palsy Cerebral Palsy
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Core Physical Examination False Cerebral Palsy Cerebral Palsy
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

 Supplemental Physical Examination False Cerebral Palsy Cerebral Palsy
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

 Supplemental Physical Examination False Cerebral Palsy Cerebral Palsy
C01012 Physical exam body system result type

Assessment result of each body system examined

 Supplemental Physical Examination False Cerebral Palsy Cerebral Palsy
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

 Supplemental Physical Examination False Cerebral Palsy Cerebral Palsy
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

 Supplemental Physical Examination False Cerebral Palsy Cerebral Palsy
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

 Supplemental Physical Examination False Cerebral Palsy Cerebral Palsy
C14430 Tanner stage

Stages of physical development in children, adolescents and adults. The scale defines physical measurements of development based on external primary and secondary sex characteristics, such as the size of the breasts, genitalia, and development of pubic hair

 Supplemental Physical Examination False Cerebral Palsy Cerebral Palsy
C17402 Site name

The name of the site for the study

 Core Physical Examination False Cerebral Palsy Cerebral Palsy
C19247 Subject ID

Subject identification ID

 Core Physical Examination False Cerebral Palsy Cerebral Palsy
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

 Core Vital Signs False Cerebral Palsy Cerebral Palsy
C01522 Height measurement

Measurement of participant's height

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
C01535 Respiratory rate

Rate of the participant's breathing (inhalation and exhalation)

 Core Vital Signs False Cerebral Palsy Cerebral Palsy
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
C01541 Weight measurement

Measurement of participant's weight

 Core Vital Signs False Cerebral Palsy Cerebral Palsy
C01550 Temperature measurement anatomic site

Anatomic site on or within the body where the temperature was measured

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
C01553 Blood pressure measurement position type

Indicator of the participant's position during the blood pressure measurement

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

 Supplemental Vital Signs False Cerebral Palsy Cerebral Palsy
Displaying 601 - 625 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.