CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 1249
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C12684 Mobility device type use indicator

Indicator whether the participant/subject currently uses the selected types of mobility device

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C18862 Death location other text

The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12794 Gene promoter deletion indicator

Whether known gene promoters were deleted

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12686 Orthosis type use indicator

Indicator whether the participant/subject currently uses the selected types of orthosis

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C01580 Temperature unit of measure

Unit of measure for the temperature numerical value

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C18861 Health insurance private group other text

The free-text field related to 'Health insurance private group type' specifying other text. Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C12207 Gastrointestinal therapy take nutrition supplement indicator

Indicator whether the participant/subject is taking nutritional supplements

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12605 Caregiver primary type

Type of relationship that the person who serves as the participant/subject's primary caregiver has with the participant/subject

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C58473 Mobility device use frequency type

Frequency type with which the participant/subject uses their mobility device(s), if applicable

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C12208 Gastrointestinal therapy nutrition supplement type

Type(s) of nutritional supplement(s) being taken by the participant/subject

Supplemental Medical History Cerebral Palsy Cerebral Palsy
C12606 Health insurance private group type

Type of private or group health insurance, if any, in which the participant/subject is currently enrolled

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C12690 Gene name

Name of the gene analyzed

Supplemental Mutation Analysis Cerebral Palsy Cerebral Palsy
C12608 Respiratory pattern status

Assessment of the respiratory breathing pattern

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C12669 Height or length measurement type

Type of height or length measurement taken

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

Supplemental Surgical and Hospitalization History Cerebral Palsy Cerebral Palsy
C00005 Birth country name

Name for country where the participant/subject was born

Core Demographics Cerebral Palsy Cerebral Palsy
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Test of Everyday Attention for Children (TEA-Ch) Cerebral Palsy Cerebral Palsy
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs Cerebral Palsy Cerebral Palsy
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Rehabilitation Therapies - Episodes of care Cerebral Palsy Cerebral Palsy
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Modified Ashworth Scale - Limb Tone Testing Cerebral Palsy Cerebral Palsy
C00214 Living with persons count

Count of other people with whom the participant/subject currently lives, cohabits, or stays

Supplemental Social Status Cerebral Palsy Cerebral Palsy
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Cerebral Palsy Cerebral Palsy
C12683 Mobility device type

Type for all mobility devices currently used by the participant/subject

Supplemental External Devices - CP Cerebral Palsy Cerebral Palsy
C01012 Physical exam body system result type

Assessment result of each body system examined

Supplemental Physical Examination Cerebral Palsy Cerebral Palsy
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Demographics Cerebral Palsy Cerebral Palsy
Displaying 226 - 250 of 1249

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.