CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 301 - 325 of 1249

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2293-C12658	C12658	Clinical event or milestone achieved age value	Age when the participant/subject achieved the clinical event or milestone	Core	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2207-C10609	C10609	Hospitalization reason	Reason why the participant/subject was hospitalized, excluding all surgeries	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2197-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2198-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2198-C00215	C00215	Living with person relationship type	Type(s) of relationship(s) between the participant/subject and all people with whom she or he currently lives, cohabits, or stays	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Cerebral Palsy	Cerebral Palsy
F2294-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Examination	False	Cerebral Palsy	Cerebral Palsy
F1968-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II)	True	Cerebral Palsy	Cerebral Palsy
F2691-C58470	C58470	Transfer transportation device use indicator	Indicator of whether the participant/subject uses any transfer/transportation devices	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2197-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
F1046-C18873	C18873	Gene mutation detected digenic result specify	The free-text field related to 'Gene mutation detected result type'. Type of gene mutation detected	Supplemental-Highly Recommended	Mutation Analysis	False	Cerebral Palsy	Cerebral Palsy
F2201-C12683	C12683	Mobility device type	Type for all mobility devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2201-C18883	C18883	Orthosis other text	The free-text field related to 'Orthosis type' specifying other text. Type of orthosis (i.e., external orthopedic appliance that prevents or assists the movement of the spine or limbs)	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2207-C12674	C12674	Surgical history procedure scoliosis type	Type of surgical procedure the participant/ subject has undergone for the treatment of scoliosis	Supplemental	Surgical and Hospitalization History	False	Cerebral Palsy	Cerebral Palsy
F2291-C18503	C18503	Assessment unable text	The free-text field to explain why there was no assessment of nystagmus performed	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C18504	C18504	Cranial nerves abnormality present text	The free-text field to explain the abnormality of the cranial nerve identified	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14448	C14448	Muscle strength abnormality assessment type	The muscle strength abnormality type	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14440	C14440	Muscle bulk assessment anatomic site	Anatomic location of the muscle bulk exam as part of the motor examination	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2198-C10678	C10678	Employment full-time status	Status of participant/subject's current full-time employment	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy
F2235-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Supplemental	Behavior Rating Inventory of Executive Function - Adult Version (BRIEF-A)	True	Cerebral Palsy	Cerebral Palsy
F2197-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2291-C14450	C14450	Muscle weakness brain pattern type	Patterns describing weakness in location of brain	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14441	C14441	Muscle bulk assessment abnormality indicator	Whether the muscle bulk assessment found any abnormalities	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2198-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.