CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2289-C22891	C22891	Corpus callosum dysplasia status	The status related to dysplasia of the median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2289-C22893	C22893	Corpus callosum mega status	The status related to mega (enlarged/thickened) median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2289-C22890	C22890	Corpus callosum thin hypoplasia status	The status related to the thinning or hypoplasia of the median sagittal section of the brain	Supplemental	Neuroimaging Cerebral Palsy Magnetic Resonance Imaging	False	Cerebral Palsy	Cerebral Palsy
F2197-C10676	C10676	Country of residence code	Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Core	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2197-C18806	C18806	Country of residence other text	The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2197-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2197-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Cerebral Palsy	Cerebral Palsy
F2291-C14434	C14434	Cranial nerve abnormal identifier type	The identified cranial nerve that assessed as abnormal	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C18504	C18504	Cranial nerves abnormality present text	The free-text field to explain the abnormality of the cranial nerve identified	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C18932	C18932	Cranial nerves global assessment other text	The free-text field related to 'Cranial nerves global assessment result' specifying other text. The condition of Cranial Nerves	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2291-C14433	C14433	Cranial nerves global assessment result	The condition of Cranial Nerves	Supplemental	Neurological Examination	False	Cerebral Palsy	Cerebral Palsy
F2691-C58630	C58630	Crutch use laterality type	Laterality type with which the participant/subject uses their crutches	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C56952	C56952	Crutch use type	Type of crutches which the participant/subject uses, if applicable	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2201-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Rehabilitation Therapies - Episodes of care	False	Cerebral Palsy	Cerebral Palsy
F2308-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Cerebral Palsy	Cerebral Palsy
F2015-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Test of Everyday Attention for Children (TEA-Ch)	True	Cerebral Palsy	Cerebral Palsy
F2295-C22780	C22780	Date time clock type	Type of clock used to record date and time	Supplemental	Vital Signs	False	Cerebral Palsy	Cerebral Palsy
F2203-C18862	C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2691-C58508	C58508	Dedicate speech generating device manufacturer name	Name of manufacturer of dedicated speech generating device	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2691-C58509	C58509	Dedicate speech generating device name	Name of dedicated speech generating device	Supplemental	External Devices - CP	False	Cerebral Palsy	Cerebral Palsy
F2293-C22886	C22886	Delay acquisition language communication milestone indicator	The indicator related to the subject having delayed acquisition of language or communication milestones, diagnosed be a physician	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17494	C17494	Delay language cognitive milestone indicator	Indicator as to whether the participant/subject has or had delayed acquisition of language or cognitive milestones, as diagnosed by a pediatrician or neurologist	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2293-C17496	C17496	Delay social function indicator	Indicator as to whether the participant/subject has or had delayed social function	Supplemental	Motor Development History	False	Cerebral Palsy	Cerebral Palsy
F2203-C10539	C10539	Diabetes first diagnosis age value	Value representing the age, in years, at which the participant was first diagnosed with diabetes mellitus	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy
F2203-C19057	C19057	Diabetes mellitus complications other text	The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Cerebral Palsy	Cerebral Palsy

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.