CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 708
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01553 Blood pressure measurement position type

Indicator of the participant's position during the blood pressure measurement

Supplemental Vital Signs Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09338 Geriatric Depression Scale (GDS) - good spirit indicator

Indicator whether respondent was in good spirits most of the time over the past week, as part of the Geriatric Depression Scale (short form) (GDSSF)

Supplemental Geriatric Depression Scale (GDS) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Supplemental Magnetic Resonance Spectroscopy Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10865 Dynamometry hand held muscle test performed date

Date (and time, if applicable and known) the hand held dynamometry was performed on the participant/subject

Supplemental Hand Held Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18807 Electromyography area studied anatomic other text

The free-text field related to 'Electromyography area studied anatomic site' specifying other text. Anatomic site where electrical activity of voluntary (skeletal) muscles are measured at rest and during voluntary action using electromyography (EMG)

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Magnetic Resonance Imaging (MRI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17798 Imaging contrast agent name

Name of imaging contrast agent used

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02011 Medication prior or concomitant dose frequency

Frequency of use of a prior/concomitant medication

Supplemental Prior and Concomitant Medications Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10687 Imaging diffusion first b value

Value, in square millimeters per second, of the first b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

Supplemental Brain Perfusion Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C01709 Lab test result status

Status of the laboratory test result, usually based upon the comparison of the test result to the normal range for the lab test performed

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11032 Neuromuscular exam muscle type

Type of muscle or muscle group examined

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11997 Timed 25-Foot Walk (T25FW) - trial 1 not completed reason

Indicator of the reason why the trial being recorded was not completed, as part of the Frontal Behavioral Inventory-ALS Version (FBI-ALS)

Supplemental Timed 25-Foot Walk (T25-FW) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

Supplemental Prior and Concomitant Medications Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17794 Imaging diffusion second b value

Value, in square millimeters per second, of the second b-value used in diffusion acquisition

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17784 Fixed dynamometry time

Time the fixed dynamometry was performed on the participant/subject

Supplemental Fixed Dynamometry Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10763 Electromyography conduction block evidence indicator

Indicator whether there are areas of focal conduction slowing or loss of compound motor action potential amplitude unexplained by nerve compression found by nerve conduction study (NCS)

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17814 Lab test antibody result

Result of the antibody laboratory test

Supplemental Laboratory Tests Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11046 Fasciculations abdominal wall status

Status, as presence or absence, of abdominal wall fasciculations

Supplemental Neuromuscular Examination Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C54445 Functional Gait Assessment (FGA) - Gait level surface task score

Score for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

Supplemental Dynamic Gait Index (DGI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C18611 Imaging field of view axis 2 measurement

Axis 2 of the image that is visible through the camera at a particular position in orientation and space in millimeters

Supplemental Diffusion Tensor Imaging (DTI) Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10782 Electrophysiology motor unit number estimation method used type

Type of method or technique used for MUNE (motor unit number estimation)

Supplemental Electrophysiology Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.