CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 708
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C09644 Fatigue Severity Scale (FSS) - prevent sustain physical function scale

Scale used to describe the extent to which fatigue prevented the patient's sustained physical functioning in the past week, as part of the Fatigue Severity Scale (FSS)

 Exploratory Fatigue Severity Scale (FSS) True Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09358 Hamilton Depression Rating Scale (HDRS) - depressed mood indicator

Score for whether, how, and in what circumstances the participant/subject expresses feelings of depression (sadness, hopeless, helpless, worthless), as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10594 Imaging parallel acquisition used indicator

Indicator of whether a parallel acquisition method is used in imaging acquisition

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11006 Vascular partial pressure carbon dioxide maximum value

Value, as mmHg, of the maximum partial pressure carbon dioxide (pCO2), as part of Gas Exchange

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10586 Imaging bandwidth value

Value, in Hertz per pixel, of bandwidth used in imaging acquisition

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10587 Imaging echo spacing value

Measurement, in milliseconds, of the echo spacing used in diffusion acquisition

 Exploratory Functional Magnetic Resonance Imaging (fMRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09366 Hamilton Depression Rating Scale (HDRS) - weight loss measurement indicator

Score for the amount of the participant/subject's weight loss according to weekly measurements, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C17860 Spectroscopy PRESS asymmetry first echo duration

The duration in milliseconds for the first echo time (TE) in an asymmetrically divided PRESS (double spin-echo) sequence

 Exploratory Magnetic Resonance Spectroscopy False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10927 Imaging inversion time duration

Duration of the time period between the 180 degree inversion pulse and the 90 degree excitation pulse in an Inversion Recovery pulse sequence

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11014 Vascular partial pressure carbon dioxide transcutaneous increase greater than 15 mmHg indicator

Indicator as to whether not the transcutaneous partial pressure carbon dioxide (pCO2) increased >15 mmHg over the 4-hour period monitored, as part of gas exchange

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10594 Imaging parallel acquisition used indicator

Indicator of whether a parallel acquisition method is used in imaging acquisition

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C09374 Hamilton Depression Rating Scale (HDRS) - retardation indicator

Score for any retardation in the participant/subject's mental or physical behavior, as part of the Hamilton Depression Rating Scale (HDRS)

 Exploratory Hamilton Depression Rating Scale (HDRS) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10691 Imaging spatially registered template indicator

Indicator as to whether or not imaging is spatially registered to a template for data analysis

 Exploratory Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C00023 Hand preference type

Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively

 Exploratory Grip Strength False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Exploratory Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10632 Diary day cramps status

Describes whether the participant/subject experienced cramps on a particular day

 Exploratory Clinical Milestones/Events False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10674 Tissue skin biopsy collection anatomic site text

Text representing the specification of the skin biopsy collection site

 Exploratory Tissue Based Marker Collection False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10858 Grip strength target value

Value of the target grip strength for the grip strength fatigue trial being recorded

 Exploratory Grip Strength Fatigue False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11137 Medication withheld duration

Duration, in hours and minutes, medication withheld from the participant/subject

 Exploratory Fasting Information False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10584 Imaging phase resolution percentage value

The value in percent of the phase resolution used in imaging acquisition

 Exploratory Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10592 Imaging flow compensation indicator

Indicator of whether flow compensation was used in imaging acquisition

 Exploratory Diffusion Tensor Imaging (DTI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C11022 Polysomnography oxygen saturation below 89 percent time duration

Duration total of O2 saturation (SPO2) below 89% in nocturnal oximetry, as part of nocturnal oximetry

 Exploratory Myocardial Oxygen Consumption, Gas Exchange and Nocturnal Oximetry False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

 Exploratory Brain Perfusion Magnetic Resonance Imaging False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C08254 Imaging visual analysis location performed type

Type of location where visual analysis of the imaging data are performed

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
C10585 Imaging phase partial Fourier indicator

Indicator of whether phase partial Fourier was used

 Exploratory Magnetic Resonance Imaging (MRI) False Amyotrophic Lateral Sclerosis Amyotrophic Lateral Sclerosis
Displaying 101 - 125 of 708

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.