F1291-C15516
C15516
Imaging tissue integrity normal appearing white matter measurement indicator
Whether measurements of the tissue integrity of normal appearing white matter were taken
Supplemental
Imaging Analysis Technique and Results - Baseline
False
Multiple Sclerosis
Multiple Sclerosis
F1291-C15517
C15517
Imaging tissue integrity normal appearing gray matter measurement indicator
Whether measurements of the tissue integrity of normal appearing gray matter were taken
Supplemental
Imaging Analysis Technique and Results - Baseline
False
Multiple Sclerosis
Multiple Sclerosis
F1046-C12794
C12794
Gene promoter deletion indicator
Whether known gene promoters were deleted
Supplemental
Mutation Analysis
False
Cerebral Palsy
Cerebral Palsy
F1046-C12794
C12794
Gene promoter deletion indicator
Whether known gene promoters were deleted
Supplemental
Mutation Analysis
False
Neuromuscular Diseases
Neuromuscular Diseases (NMD)
F1517-C12794
C12794
Gene promoter deletion indicator
Whether known gene promoters were deleted
Supplemental
Mutation Analysis
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1938-C12794
C12794
Gene promoter deletion indicator
Whether known gene promoters were deleted
Supplemental
Mutation Analysis
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
F1995-C12794
C12794
Gene promoter deletion indicator
Whether known gene promoters were deleted
Supplemental
Mutation Analysis
False
Myasthenia Gravis
Myasthenia Gravis (MG)
F1996-C12794
C12794
Gene promoter deletion indicator
Whether known gene promoters were deleted
Supplemental
Mutation Analysis
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
F1035-C12313
C12313
Pulmonary function maximal pressure trial difference indicator
Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water
Supplemental-Highly Recommended
Pulmonary Function Testing
False
Neuromuscular Diseases
Neuromuscular Diseases (NMD)
F1522-C12313
C12313
Pulmonary function maximal pressure trial difference indicator
Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water
Supplemental-Highly Recommended
Pulmonary Function Testing
False
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
F1898-C12313
C12313
Pulmonary function maximal pressure trial difference indicator
Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water
Supplemental-Highly Recommended
Pulmonary Function Testing
False
Congenital Muscular Dystrophy
Congenital Muscular Dystrophy (CMD)
F1979-C12313
C12313
Pulmonary function maximal pressure trial difference indicator
Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water
Supplemental
Pulmonary Function Testing
False
Myasthenia Gravis
Myasthenia Gravis (MG)
F1981-C12313
C12313
Pulmonary function maximal pressure trial difference indicator
Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water
Core
Pulmonary Function Testing
False
Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA)
F2125-C12313
C12313
Pulmonary function maximal pressure trial difference indicator
Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water
Supplemental-Highly Recommended
Pulmonary Function Testing
False
Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral Muscular Dystrophy
F2134-C12313
C12313
Pulmonary function maximal pressure trial difference indicator
Whether each trial for maximal inspiratory pressure (MIP) and maximal expiratory pressure (MEP) had a difference greater than 3 cm, measured in centimeters of water
Supplemental-Highly Recommended
Pulmonary Function Testing
False
Myotonic Muscular Dystrophy
Myotonic Muscular Dystrophy
F0818-C06413
C06413
Spinal surgery indicator
Whether any of the following spinal surgical procedures were performed during the inpatient hospitalization following spinal cord injury: laminectomy, neural canal restoration, reduction, spinal fusion, or internal fixation of the spine. Laminectomy is defined as removal of normal intact lamina or foreign body at the site of spinal cord damage. Neural canal restoration is defined as the removal of bone or disk fragments, blood clots, or foreign bodies (such as bullet fragments) from the spinal canal. Reduction is defined as replacement of one or more dislocated, subluxed or angulated vertebra into anatomic or near anatomic alignment. Spinal fusion is defined as the addition of a bone graft to the vertebrae for the purpose of achieving intervertebral fusion or stability. Internal fixation of the spine is defined as attaching rods, plates, wires, etc. to the spine (individually or in combination) to provide internal surgical stabilization of the vertebral column
Supplemental
International SCI Core Data Set
False
Spinal Cord Injury
Spinal Cord Injury
F2513-C06413
C06413
Spinal surgery indicator
Whether any of the following spinal surgical procedures were performed during the inpatient hospitalization following spinal cord injury: laminectomy, neural canal restoration, reduction, spinal fusion, or internal fixation of the spine. Laminectomy is defined as removal of normal intact lamina or foreign body at the site of spinal cord damage. Neural canal restoration is defined as the removal of bone or disk fragments, blood clots, or foreign bodies (such as bullet fragments) from the spinal canal. Reduction is defined as replacement of one or more dislocated, subluxed or angulated vertebra into anatomic or near anatomic alignment. Spinal fusion is defined as the addition of a bone graft to the vertebrae for the purpose of achieving intervertebral fusion or stability. Internal fixation of the spine is defined as attaching rods, plates, wires, etc. to the spine (individually or in combination) to provide internal surgical stabilization of the vertebral column
Supplemental
International SCI Core Data Set v2.0
False
Spinal Cord Injury
Spinal Cord Injury
F0818-C06003
C06003
Injury associate spinal cord injury indicator
Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery
Supplemental-Highly Recommended
International SCI Core Data Set
False
Spinal Cord Injury
Spinal Cord Injury
F1791-C06003
C06003
Injury associate spinal cord injury indicator
Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery
Supplemental
Pre-Hospital Assessment Form
False
Spinal Cord Injury
Spinal Cord Injury
F2513-C06003
C06003
Injury associate spinal cord injury indicator
Whether any of the following pre-specified major injuries occurred at the same time as the spinal cord injury: moderate to severe traumatic brain injury (Glasgow Coma Scale 12 or below at discharge), non-vertebral fractures requiring surgery, severe facial injuries affecting sense organs, major chest injury requiring chest-tube or mechanical ventilation, traumatic amputations of an arm or leg (or injuries severe enough to require surgical amputation), severe hemorrhaging, or damage to any internal organ requiring surgery
Supplemental
International SCI Core Data Set v2.0
False
Spinal Cord Injury
Spinal Cord Injury
F1115-C14596
C14596
EEG ictal available indicator
Whether an ictal electroencephalogram (EEG) is available
Supplemental
Scalp Electroencephalography (EEG)
False
Epilepsy
Epilepsy
F0936-C10723
C10723
Echocardiogram completed indicator
Whether an echocardiogram was performed on the participant/subject
Supplemental
Echocardiogram
False
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0936-C10723
C10723
Echocardiogram completed indicator
Whether an echocardiogram was performed on the participant/subject
Supplemental
Echocardiogram
False
Stroke
Stroke
F2825-C10723
C10723
Echocardiogram completed indicator
Whether an echocardiogram was performed on the participant/subject
Supplemental
Echocardiogram
False
Friedreich's Ataxia
Friedreich's Ataxia
F1158-C14208
C14208
Pre-hospital neurological impairment scale indicator
Whether a pre-hospital neurologic impairment scale screen was documented by EMS personnel. Pre-hospital neurologic impairment scales are defined as published validated scales or those required by state EMS agencies (e.g., GCS for suspected hemorrhagic stroke or any stroke with impaired consciousness, Los Angeles Motor Scale, etc.)
Supplemental
Pre-Hospital/Emergency Medical Service (EMS) Course
False
Stroke
Stroke