CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdisease Name

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0016-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	General (For all diseases)	General (For all diseases)
F0016-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	Demographics	False	General (For all diseases)	General (For all diseases)
F0016-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Demographics	False	General (For all diseases)	General (For all diseases)
F0016-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	Demographics	False	General (For all diseases)	General (For all diseases)
F0017-C18740	C18740	Off study intervention prematurely other text	The free-text field related to 'Off study intervention prematurely reason' specifying other text. Primary reason participant/subject discontinued study intervention before planned end of study	Supplemental	Study Discontinuation/Completion	False	General (For all diseases)	General (For all diseases)
F0025-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests and Tracking	False	General (For all diseases)	General (For all diseases)
F0025-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests and Tracking	False	General (For all diseases)	General (For all diseases)
F0026-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	General (For all diseases)	General (For all diseases)
F0300-C18732	C18732	Language primary other text	The free-text field related to 'Language primary text' specifying other text. Text for the language the participant/subject speaks most often	Supplemental	Demographics	False	Traumatic Brain Injury	Comprehensive
F0300-C18751	C18751	Sex participant or subject genotype other text	The free-text field related to 'Sex participant or subject genotype type' specifying other text. The difference between male and female, based upon the interactions between genes and between the genotype and the environment. Genotype is identified based on the individual's reproductive organs and functions assigned by chromosomal complement	Core	Demographics	False	Traumatic Brain Injury	Comprehensive
F0301-C18658	C18658	Employment expanded status	Status of participant/subject's current employment (expanded list)	Core	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0301-C18676	C18676	Employment expanded other text	The free-text field related to 'Employment expanded status' specifying other text. Status of participant/subject's current employment	Core	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0301-C18684	C18684	Health insurance other text	The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0301-C18738	C18738	Military combat operation other text	The free-text field related to 'Military combat operation name' specifying other text. Name of specific combat operations in which the participant/subject officially participated	Supplemental	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0301-C18739	C18739	Military USA service branch other text	The free-text field related to 'Military USA service branch type' specifying other text. Branch of service in the U.S. military, not including the Commissioned Corps	Supplemental	Socioeconomic Status	False	Traumatic Brain Injury	Comprehensive
F0302-C18745	C18745	Perinatal neurologic event other text	The free-text field related to 'Perinatal neurologic event type' specifying other text. Type of perinatal neurologic injury	Supplemental	Significant Medical History	False	Traumatic Brain Injury	Comprehensive
F0302-C18745	C18745	Perinatal neurologic event other text	The free-text field related to 'Perinatal neurologic event type' specifying other text. Type of perinatal neurologic injury	Supplemental	Significant Medical History	False	Traumatic Brain Injury	Acute Hospitalized
F0302-C18745	C18745	Perinatal neurologic event other text	The free-text field related to 'Perinatal neurologic event type' specifying other text. Type of perinatal neurologic injury	Supplemental	Significant Medical History	False	Traumatic Brain Injury	Epidemiology
F0302-C18745	C18745	Perinatal neurologic event other text	The free-text field related to 'Perinatal neurologic event type' specifying other text. Type of perinatal neurologic injury	Supplemental	Significant Medical History	False	Traumatic Brain Injury	Moderate/Severe TBI: Rehabilitation
F0303-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Traumatic Brain Injury	Comprehensive
F0303-C18770	C18770	Tobacco product used other text	The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Traumatic Brain Injury	Acute Hospitalized

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.