CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 326 - 350 of 57855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C52857 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history recurrent unipolar onset age value

Age of first onset of recurrent unipolar disorder in the subject/participant's relative being described, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Acute Hospitalized
C52857 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history recurrent unipolar onset age value

Age of first onset of recurrent unipolar disorder in the subject/participant's relative being described, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Epidemiology
C52857 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history recurrent unipolar onset age value

Age of first onset of recurrent unipolar disorder in the subject/participant's relative being described, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Concussion/Mild TBI
C52857 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history recurrent unipolar onset age value

Age of first onset of recurrent unipolar disorder in the subject/participant's relative being described, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Supplemental Family History Research Diagnostic Criteria (FH-RDC) False Traumatic Brain Injury Moderate/Severe TBI: Rehabilitation
C52857 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history recurrent unipolar onset age value

Age of first onset of recurrent unipolar disorder in the subject/participant's relative being described, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Exploratory Family History Research Diagnostic Criteria (FH-RDC) False Sport-Related Concussion Comprehensive
C52857 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history recurrent unipolar onset age value

Age of first onset of recurrent unipolar disorder in the subject/participant's relative being described, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Exploratory Family History Research Diagnostic Criteria (FH-RDC) False Sport-Related Concussion Persistent/Chronic
C52857 Family History Research Diagnostic Criteria (FH-RDC) - Relative psychiatric illness history recurrent unipolar onset age value

Age of first onset of recurrent unipolar disorder in the subject/participant's relative being described, as part of the Family History - Research Diagnostic Criteria (FH-RDC)

 Exploratory Family History Research Diagnostic Criteria (FH-RDC) False Sport-Related Concussion Subacute
C10705 Walking difficulty age interfered with activities value

Age of participant/subject when difficulty with walking interfered with activities

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10706 Walking difficulty age support first needed value

Age of participant/subject when intermittent support first needed for walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10706 Walking difficulty age support first needed value

Age of participant/subject when intermittent support first needed for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10706 Walking difficulty age support first needed value

Age of participant/subject when intermittent support first needed for walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C10707 Walking difficulty age permanent support started value

Age of participant/subject when permanent support first needed walking

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10707 Walking difficulty age permanent support started value

Age of participant/subject when permanent support first needed walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10707 Walking difficulty age permanent support started value

Age of participant/subject when permanent support first needed walking

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C10708 Wheelchair primary mobility means age value

Age of participant/subject when they first began to use a wheelchair as their primary means of mobility

 Supplemental Activities of Daily Living and Gait False Friedreich's Ataxia Friedreich's Ataxia
C10708 Wheelchair primary mobility means age value

Age of participant/subject when they first began to use a wheelchair as their primary means of mobility

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab Comprehensive
C10708 Wheelchair primary mobility means age value

Age of participant/subject when they first began to use a wheelchair as their primary means of mobility

 NeuroRehab Supplemental-Highly Recommended Devices: Mobility and Manipulation False NeuroRehab NeuroRehab General
C08087 Sibling death age value

Age of sibling when he/she died

 Supplemental History of Early Exposure to Huntington's Disease False Huntington's Disease Huntington's Disease
C08087 Sibling death age value

Age of sibling when he/she died

 Supplemental Medical and Family History False Headache Headache
C17834 Quality of Life in Swallowing Disorders (SWAL-QOL) - age number

Age of subject/participant

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab Comprehensive
C17834 Quality of Life in Swallowing Disorders (SWAL-QOL) - age number

Age of subject/participant

 NeuroRehab Supplemental-Highly Recommended Quality of Life in Swallowing Disorders (SWAL-QOL) True NeuroRehab NeuroRehab General
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

 Supplemental Surgical History False Myasthenia Gravis Myasthenia Gravis (MG)
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

 Supplemental Surgical History False Neuromuscular Diseases Neuromuscular Diseases (NMD)
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

 Supplemental Surgical and Hospitalization History - SMA False Spinal Muscular Atrophy Spinal Muscular Atrophy (SMA)
C08018 Surgery age value

Age of the participant/subject at the time of the selected surgical procedure

 Supplemental Surgical History False Duchenne Muscular Dystrophy/Becker Muscular Dystrophy Duchenne Muscular Dystrophy (DMD)/Becker Muscular Dystrophy (BMD)
Displaying 326 - 350 of 57855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.