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Health Utilities Index (HUI)
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Exploratory: Cerebral Palsy (CP)
Short Description of Instrument
The HUI® measurement system is a generic, preference-scored, comprehensive system for measuring health status, health-related quality of life, and producing utility scores.
Comments/Special Instructions
Originally developed for ages 5 and older. Now includes ages 3–5yrs.
The HRQL scoring systems provide utility (preference) scores on a generic scale where dead = 0.00 and perfect health = 1.00. HUI® scores meet or exceed the criteria for calculating quality-adjusted life years (QALY), and the requirements of published guidelines for economic evaluations of pharmaceutical and other health care services. The health status classification and HRQL scoring systems are generic in terms of applying to all people age 5 years and older in both clinical and general populations. A health-status classification system based on HUI®-2 and HUI®-3 suitable for children 3 to 5 years of age is under development.
Used in a large population study in Canada on children with CP. GMFCS correlated with mobility function domain of HUI®-3, correlations less for GMFCS and dexterity used in a large study of youth and young adults with CP. Has been shown to be a reliable tool able to capture the health status about individuals over a one month period. Validity of instrument as a discriminant tool has been shown in children with cancer and in follow-up of extremely low birth babies.
Eiser C, Morse R. The measurement of quality of life in children: past and future perspectives. J Dev Behav Pediatr. 2001;22(4):248–256.
Feeny DH, Torrance GW, Furlong WJ. Health Utilities Index. In: Spilker B, editor. Quality of Life and Pharmacoeconomics in Clinical Trials Second Edition Second ed. Philadelphia: Lippincott-Raven Press; 1996. pp. 239–252.
Furlong WJ, Feeny DH, Torrance GW, Barr RD. The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies. Ann Med. 2001;33(5):375–384.
Health Utilities Inc. Health-Related Quality of Life: HUI Inc; [cited 2016 29 June]. Available from: http://www.healthutilities.com/.
Horsman J, Furlong W, Feeny D, Torrance G. The Health Utilities Index (HUI): concepts, measurement properties and applications. Health Qual Life Outcomes. 2003;1:54.
Kennes J, Rosenbaum P, Hanna SE, Walter S, Russell D, Raina P, Bartlett D, Galuppi B. Health status of school-aged children with cerebral palsy: information from a population-based sample. Dev Med Child Neurol. 2002;44(4):240–247.
Torrance GW, Furlong W, Feeny D. Health utility estimation. Expert Rev Pharmacoecon Outcomes Res. 2002;2(2):99–108.
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