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Pediatric Quality of Life Inventory Neuromuscular Module
Availability
For more information please follow this link: Pediatric Quality of Life Inventory Neuromuscular Module
Author: James W. Varni, email- PROinformation@mapi-trust.org, Mapi Research Trust
Classification
Exploratory: Myotonic Dystrophy (DM )
Short Description of Instrument
Pathology: Musculoskeletal diseases and Nervous System diseses
 
Disease: Muscular Diseases (Neuromuscular Diseases)
 
Objective: To measure HRQOL dimensions specific to patients with neuromuscular disorders including Spinal Muscular Atrophy and Duchenne Muscular Dystrophy
 
Population for intended use: Adolescent and Pediatrics
Scoring
Scoring: Based on a 5-point Likert scale; 0 (Never) to 4 (Almost always). Scores are transformed on a scale from 0 to 100. To Transform score, itens are reversed scored and linearly transformed to a 0-100 scale as follows: 0=100, 1=75, 2=50, 3=25, 4=0. Scores are then calculated by dimensions: If more than 50% of the items in the scale are missing, the scale scores should not be computed.
 
Mean score: equals the sume of the items over the number of items answered.
 
Total score: equals the sum of all the items over the number of items answered on all the scales.
 
Score Intepretation: The higher the score indicate lower problems. If more than 50% of the items in the scale are missing, the Scale Scores should not be computed. If %0% or more items are completed: Impute the mean of the completed items in a scale.
References
Davis SE, Hynan LS, Limbers CA, Andersen CM, Greene MC, Varni JW, Iannaccone ST. The PedsQL™ in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales. J Clin Neuromuscul Dis. 2010; 11(3):97-109.
 
Iannaccone ST, Hynan LS, Morton A, Buchanan R, Limbers CA, Varni JW; AmSMART Group. The PedsQL™ in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular Module. Neuromuscul Disord. 2009; 19(12):805–812.
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