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Parkinson's Disease Questionnaire (PDQ-39)
Availability
Please visit this website for more information about the instrument: Parkinson's Disease Questionnaire
Classification
Supplemental – Highly Recommended: Parkinson’s Disease (PD)
Short Description of Instrument
This 39-item scale has eight domains: mobility (10 items), activities of daily living (six items), emotional wellbeing (six items), stigma (four items), social support (three items), cognitions (four items), communication (three items), and bodily discomfort (three items).
Scoring
Items are rated on a scale of 0-4 (0 = no change and 4 = most severe). Lower scores relate less impact of disease.
References
Jenkinson C, Fitzpatrick R, Peto V, Greenhall R, Hyman N. The Parkinson's Disease Questionnaire (PDQ-39): development and validation of a Parkinson's disease summary index score. Age Ageing. 1997 Sep;26(5):353-7.
 
Peto V, Jenkinson C, Fitzpatrick R, Greenhall R. The development and validation of a short measure of functioning and well being for individuals with Parkinson's disease. Qual Life Res. 1995 Jun; 4(3):241-8.
 
Fitzpatrick R, Peto V, Jenkinson C, Greenhall R, Hyman N. Health-related quality of life in Parkinson's disease: a study of outpatient clinic attendees. Mov Disord. 1997 Nov; 12(6):916-22.
 
Hagell P, Nygren C. The 39 item Parkinson's disease questionnaire (PDQ-39) revisited: implications for evidence based medicine. J Neurol Neurosurg Psychiatry. 2007; 78:1191-8.
 
Marinus J, Ramaker C, van Hilten JJ, Stiggelbout AM. Health related quality of life in Parkinson's disease: a systematic review of disease specific instruments. J Neurol Neurosurg Psychiatry. 2002 Feb; 72(2):241-8.
 
Bushnell DM, Martin ML. Quality of life and Parkinson's disease: translation and validation of the US Parkinson's Disease Questionnaire (PDQ-39). Qual Life Res. 1999 Jun; 8(4):345-50.
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