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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Sub-Domain: Social Status
CRF: Social Status
Item count: 18 (18 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C00012
Education level USA type
EduLvlUSATyp
Highest grade or level of school participant/subject has completed or the highest degree received
What is the highest grade or level of school you have completed or the highest degree you have received?
Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown;
Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown;
Alphanumeric
Choose highest level attained.
It may be helpful to code education numerically if the data are needed for neuropsychological testing. Please refer to the data element named "Education for scoring of neuropsychological tests" for more information.
National Health and Nutrition Examination Survey (NHANES); National Health Interview Survey (NHIS); PhenX Toolkit (https://www.phenxtoolkit.org) Current Educational Attainment #011001
Adult;Pediatric
Exploratory
3.0
7/25/2013
HIGHEST_EDU_LVL_CAT
Social Status
Social Status
Participant Characteristics
Education level USA type
 
Single Pre-Defined Value Selected
     
3134878
 
C00015
Education year count
EduYrCt
Number of years of education completed (age 5 and beyond)
Years of education
  
Numeric Values
For years completed, after the age of 5, code the number of years attained (0–30 years), normed to someone moving full time at the usual pace, i.e. a year that was repeated counts as only 1 year and the usual single-year full-time load completed over several years counts as 1 year. Certificate and technical programs do NOT count no matter how specialized. The number of years of typical completion of the relevant program is counted. If the subject obtained their education outside the United States, ask about their educational system to estimate the correct coding – Internship, Residency, and Fellowship years are experiential training and do not count.
No references available
Adult;Pediatric
Exploratory
3.0
7/22/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Education level USA type
 
Free-Form Entry
0
30
year
  
3134878
 
C00023
Hand preference type
HandPrefTyp
Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively.
Handedness
Left hand;Right hand;Forced right;Both hands;
Left hand;Right hand;Forced right;Both hands;
Alphanumeric
The purpose of this element is to determine dominant hemisphere; therefore, for those who were originally left handed but forced to write right-handed, record left-handed.
No references available
Adult;Pediatric
Exploratory
3.0
7/25/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Hand preference type
 
Single Pre-Defined Value Selected
     
2180147
 
C00204
Employment current status
EmplmtStatu
Status of participant/subject's current employment
Current employment status
Working Now;Only temporarily laid off;Sick leave or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown;
Working Now;Only temporarily laid off;Sick leave or maternity leave;Looking for work, unemployed;Retired;Disabled, permanently or temporarily;Keeping house;Student;Other, specify;Unknown;
Alphanumeric
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)
PhenX Toolkit (https://www.phenxtoolkit.org) Current Employment Status #011301
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)
Adult;Pediatric
Exploratory
3.0
8/28/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Employment status
 
Single Pre-Defined Value Selected
       
C18677
Employment other text
EmplmtOTH
The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment
Other, specify
  
Alphanumeric
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)
PhenX Toolkit (https://www.phenxtoolkit.org) Current Employment Status #011301
National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm)
Adult;Pediatric
Exploratory
1.0
5/27/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
 
4000
Free-Form Entry
       
C52560
Occupation paid type
OccupatPaidTyp
Type of paid occupation as defined by the International Labor Organization/International Standard Classification of Ocupations (ILO/ISCO)
Type of paid occupation
  
Numeric Values
Four-digit code as defined by ILO/ISCO
No references available
Adult;Pediatric
Exploratory
1.0
1/23/2017
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
  
Free-Form Entry
       
C19258
Occupation primary status
OccupationPrimaryStatus
The status indicating the participant's/subject's current primary occupational status.
Primary occupation
Paid work;Homemaker;Student;Retired;Retired;Unpaid work;Unemployed;Other, specify;Unknown;
Paid work (employed/self-employed, including military);Homemaker;Student (including on the job training);Retired (disability pension);Retired (non-disability);Unpaid work (volunteer);Unemployed (none of the above);Other, specify;Unknown;
Alphanumeric
Choose one
No references available
Adult;Pediatric
Exploratory
1.0
6/6/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
  
Single Pre-Defined Value Selected
       
C19259
Occupation primary other status text
OccupationPrimaryOthrStatusTxt
The free-text field to capture other status indicating the participant's/subject's current primary occupational status.
Other, specify
  
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/6/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
 
4000
Free-Form Entry
       
C19260
Occupation secondary status
OccupationSecStatus
The status indicating the participant's/subject's current secondary occupational status.
Secondary occupation
N/A;Paid work;Homemaker;Student;Retired;Retired;Unpaid work;Unemployed;Other, specify;Unknown;
N/A;Paid work (employed/self-employed, including military);Homemaker;Student (including on the job training);Retired (disability pension);Retired (non-disability);Unpaid work (volunteer);Unemployed (none of the above);Other, specify;Unknown;
Alphanumeric
Choose all that apply
No references available
Adult;Pediatric
Exploratory
1.0
6/6/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
  
Multiple Pre-Defined Values Selected
       
C19262
Occupation secondary other status text
OccupationSecOtherStatusTxt
The free-text field to capture other status indicating the participant's/subject's current secondary occupational status.
Other, specify
  
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
6/6/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
 
4000
Free-Form Entry
       
C19482
Paid work hour week count
PaidWorkHourWeekCt
The number of hours per week in paid work.
Workload
  
Numeric Values
Hours/week
No references available
Adult;Pediatric
Exploratory
1.0
6/17/2014
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
  
Free-Form Entry
0
168
Hours per week
    
C00207
Marital or partner status
MartlPartnerStatus
Status of participant/subject's current domestic relationship, whether marital or partnered
Marital/Partner Status
Never married;Married;Domestic partnership;Divorced;Separated;Widowed;
Never married;Married;Domestic partnership;Divorced;Separated;Widowed;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
7/25/2013
PRSN_MARST_CAT
Social Status
Social Status
Participant Characteristics
Marital or partner status
 
Single Pre-Defined Value Selected
     
2188083
 
C00214
Living with persons count
PrsnCohabitCt
Count of other people with whom the participant/subject currently lives, cohabits, or stays
Number of people living with
  
Numeric Values
No instructions available
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf
Adult;Pediatric
Exploratory
3.0
7/25/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Living with persons number
 
Free-Form Entry
0
99
     
C00215
Living with person relationship type
LivPrsnRltnshpTyp
Type(s) of relationship(s) that obtain between the participant/subject and all people with whom she or he currently lives, cohabits, or stays
If one or more people, describe the individual(s) with whom you live
Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown;
Husband or wife;Biological son or daughter;Adopted son or daughter;Stepson or stepdaughter;Brother or sister;Father or mother;Stepfather or stepmother;Grandchild;Grandparent;Parent-in-law;Son-in-law or daughter-in-law;Other relative;Roomer or boarder;Housemate or roommate;Unmarried partner;Foster child;Other nonrelative;Military unit member;N/A - Homeless;N/A - Alone;Personal care attendant;Other patient/ resident in care facility;Unknown;
Alphanumeric
Skip this data element if the participant/ subject lives alone. If he/she lives with one or more people, choose all that apply.
Code values taken from PhenX Toolkit (https://www.phenxtoolkit.org) Household Roster-Relationships #011401
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf
Adult;Pediatric
Exploratory
3.0
7/25/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Living with person relationship type
 
Multiple Pre-Defined Values Selected
       
C00205
Family income range
FmlyIncRange
Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member
Income group that best represents your total combined family income for the past 12 months
Under $15,000;$15,000 to $24,999;$25,000 to $34,999;$35,000 to $49,999;$50,000 to $74,999;$75,000 to $99,999;$100,000 and over;Refused;Unknown;
Under $15,000;$15,000 to $24,999;$25,000 to $34,999;$35,000 to $49,999;$50,000 to $74,999;$75,000 to $99,999;$100,000 and over;Refused;Unknown;
Alphanumeric
No instructions available
Women's Health Initiative American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf
Adult;Pediatric
Exploratory
3.0
7/25/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Family income range
 
Single Pre-Defined Value Selected
       
C00206
Family income supported persons count
FamilyIncmeSupprtPersCt
Count of all people, including the participant/subject, who are supported by the household gross annual income reported
Number of people supported by this income, including you
  
Numeric Values
No instructions available
American Community Survey questionnaire. U.S. Department of Commerce, U.S. Census Bureau. http://www.census.gov/acs/www/Downloads/questionnaires/2012/Quest12.pdf
Adult;Pediatric
Exploratory
3.0
7/25/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Family income supported persons number
 
Free-Form Entry
1
99
     
C52561
Blood transfusion receive indicator
BloodTransfRecInd
Whether the participant/subject receives blood transfusions
Do you receive blood transfusions?
Yes;No;
Yes;No;
Alphanumeric
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
1/23/2017
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
  
Single Pre-Defined Value Selected
       
C00013
Education level primary caregiver USA type
EduLvlPrimCaregiverUSATyp
Highest grade or level of school the participant's/subject's primary caregiver has completed or the highest degree he/she has received
What is the highest grade or level of school the primary care giver has completed or the highest degree she/he has received
Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational, technical, or vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown;
Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational, technical, or vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown;
Alphanumeric
Choose highest level attained. This element is recommended for pediatric SAH studies.
National Health and Nutrition Examination Survey (NHANES); National Health Interview Survey (NHIS); PhenX Toolkit (https://www.phenxtoolkit.org) Current Educational Attainment #011001
Pediatric
Exploratory
3.0
7/20/2013
Aliases for variable name not defined
Social Status
Social Status
Participant Characteristics
Education level primary caregiver USA type
 
Single Pre-Defined Value Selected
       
07-20-2019
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