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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Sub-Domain: Disability
CRF: Disability-Adjusted Life Years (DALY)
Item count: 4 (4 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C13230
Modified Rankin Scale (mRS) Score
MRSScore
The overall modified Rankin Scale (mRS) score assigned to the participant/ subject
Modified Rankin Scale score (mRS)
  
Numeric values
No instructions available
No references available
Adult;Pediatric
Exploratory
3.0
6/21/2013
Aliases for variable name not defined
Disability-Adjusted Life Years (DALY)
Disability
Outcomes and End Points
mRS Score
 
Single Pre-Defined Value Selected
       
C54722
Death age value
DeathAgeVal
Value of the subject/participant's age at death
Age at death (years)
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
4/10/2017
Aliases for variable name not defined
Disability-Adjusted Life Years (DALY)
Disability
Outcomes and End Points
  
Free-Form Entry
0
130
     
C54723
Disability elapsed year count
DisabilityElapsYearCt
Count of elapsed years that the subject/participant jas had the specified disability
Years with disability
  
Numeric Values
No instructions available
No references available
Adult;Pediatric
Exploratory
1.0
4/10/2017
Aliases for variable name not defined
Disability-Adjusted Life Years (DALY)
Disability
Outcomes and End Points
  
Free-Form Entry
0
130
years
    
C54724
Disability adjusted life year score
DALYScore
Disability-Adjusted Life Year (DALY) score
Disability-Adjusted Life Year (DALY) score (sum of Years of Life Lost [YLL] and the Years of Life Lost due to Disability [YLD])
  
Numeric Values
• DALY is the sum of Years of Life Lost (YLL) and the Years Lost due to Disability (YLD) · DALY = YLL + YLD • The YLL is the number of deaths multiplied by the standard life expectancy at the age of death: · YLL = N x L · N = number of deaths · L = standard life expectancy at age of death (years) • The YLD is calculated using the number of incident cases in a time period, the average duration of the disease and a disability weight factor: · YLD = I x DW x L · I = number of incident cases · DW = disability weight · L = average duration of the disease until remission or death (in years). • Please note that there is currently no defined disability weight for SAH. It can be calculated using the methodology in the publication Hong KS, Saver JL, Kang DW, Bae HJ, Yu KH, Koo J, Han MK, Cho YJ, Park JM, Lee BC. Years of optimum health lost due to complications after acute ischemic stroke: disability-adjusted life-years analysis. Stroke. 2010 Aug;41(8):1758-65. • For more information, visit http://www.who.int/healthinfo/global_burden_disease/metrics_daly/en/
No references available
Adult;Pediatric
Exploratory
1.0
4/10/2017
Aliases for variable name not defined
Disability-Adjusted Life Years (DALY)
Disability
Outcomes and End Points
  
Free-Form Entry
       
07-20-2019
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