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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Traumatic Brain Injury
SubDisease: Comprehensive
Sub-Domain: Family and Environment
CRF: Child and Adolescent Scale of Environment (CASE)
Item count: 62 (31 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C50423
Child and Adolescent Scale of Environment (CASE) - Child name
CASEChldName
Name of participant/subject, as part of the Child and Adolescent Scale of Environment (CASE).
Child's Name
  
Alphanumeric
No instructions available
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Free-Form Entry
       
C50424
Child and Adolescent Scale of Environment (CASE) - Relative name
CASERelName
Name of participant/subject's relative, or the person filling out the scale, as part of the Child and Adolescent Scale of Environment (CASE).
Your Name
  
Alphanumeric
No instructions available
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Free-Form Entry
       
C50425
Child and Adolescent Scale of Environment (CASE) - Relationship text
CASERelateTxt
Text describing your relationship to the participant/subject, as part of the Child and Adolescent Scale of Environment (CASE).
Your relationship to child
  
Alphanumeric
No instructions available
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Free-Form Entry
       
C06005
Data collected date and time
DataCollDateTime
Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.
Date you completed survey
  
Date or Date & Time
When date/time data are prepared for aggregation or sharing they should be converted to the format specified by ISO 8601, YYYY-MM-DDThh:mm:ss.
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
3.0
7/24/2013
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
Data collected date and time
 
Free-Form Entry
       
C50426
Child and Adolescent Scale of Environment (CASE) - Home design layout problem indicator
CASEHomeDesLayProbInd
The indicator relating to the child having a problem with the design or layout of his/her home, as part of the Child Adolescent Scale of Environment (CASE)
Problem with design and layout of home (Hard to get to places and things, or hard to see or hear important information)
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50427
Child and Adolescent Scale of Environment (CASE) -Community building place design layout problem indicator
CASEBuildPlaceDesLayProbInd
The indicator relating to the child having a problem with the design or layout of buildings or places that he or she uses in his/her community of neighborhood, as part of the Child Adolescent Scale of Environment (CASE)
Problem with design and layout of buildings and places your child uses in the community or neighborhood
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50428
Child and Adolescent Scale of Environment (CASE) - School work design layout problem indicator
CASESchoolWorkDesLayProbInd
The indicator relating to the child having a problem with the design or layout of his/her school or workplace, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE)
Problem with design or layout of school or work setting (Circle school or work)
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50429
Child and Adolescent Scale of Environment (CASE) - School work question type
CASESchoolWorkQuesTyp
The type of setting relating to the school or work question being asked, as part of the as part of the Child Adolescent Scale of Enviroment (CASE)
Choose school or work
  
Alphanumeric
Choose school or work
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50430
Child and Adolescent Scale of Environment (CASE) - Child community support encouragement lack indicator
CASEChldComtySuprtEnLackInd
The indicator relating to the child lacking support or encouragement in his/her community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE)
Lack of support or encouragement for your child in the community or neighborhood
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50431
Child and Adolescent Scale of Environment (CASE) - Child school work support encouragement lack indicator
CASEChldSchWorkSuprtEncLackInd
The indicator relating to the child lacking support or encouragement at school or work, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE)
Lack of support for your child or school or work (Circle school or work)
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50432
Child and Adolescent Scale of Environment (CASE) - School work attitude towards child problem indicator
CASESchWorkAttTowChldProbInd
The indicator relating to there being a problem with other people's attitudes towards the child at school or work, depending on which is selected, as part of the Child Adolescent Scale of Environment (CASE)
Problems with people's attitudes towards your child at school or work (Circle school or work)
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50433
Child and Adolescent Scale of Environment (CASE) - Community attitude towards child problem indicator
CASEComtyAttTowChldProbInd
The indicator relating to there being a problem with other people's attitudes towards the child in his/her community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE)
Problems with people's attitudes towards your child in the community or neighborhood
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50434
Child and Adolescent Scale of Environment (CASE) - Inadequate lack of assistive device equipment indicator
CASEInadLackAssistDevEquipInd
The indicator relating to there being an inadequate amount or lack of assistive devices or equipment for the child, as part of the Child Adolescent Scale of Environment (CASE)
Inadequate or lack of assistive devices or equipment
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50435
Child and Adolescent Scale of Environment (CASE) - Inadequate lack of assistance people home community indicator
CASEInadLackAsstHomeComInd
The indicator relating to there being an inadequate amount or lack of assistance from people at home or in the child's community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE)
Inadequate or lack of assistance from people at home or in the community or neighborhood
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50436
Child and Adolescent Scale of Environment (CASE) - Inadequate lack of assistance people school work indicator
CASEInadLackAssPplSchoWorkInd
The indicator relating to there being an inadequate amount or lack or assistance from people at school or work, depending on which is chosen, as part of the Child Adolescent Scale of Environment (CASE)
Inadequate or lack of assistance from people at school or work (choose school or work)
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50437
Child and Adolescent Scale of Environment (CASE) - Inadequate lack of transportation indicator
CASEInadLackTrsptInd
The indicator relating to there being an inadequate amount or lack of transportation for the child, as part of the Child Adolescent Scale of Environment (CASE)
Inadequate or lack of transportation
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50438
Child and Adolescent Scale of Environment (CASE) - Inadequate lack of program service school indicator
CASEInadLackProgServSchoolInd
The indicator relating to there being an inadequate amount or lack of programs or services for the child at school, as part of the Child Adolescent Scale of Environment (CASE)
Inadequate or lack of programs or services at school
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50439
Child and Adolescent Scale of Environment (CASE) - Inadequate lack of program service community indicator
CASEInadLackProgSrvcComtyInd
The indicator relating to there being an inadequate amount or lack of programs or services for the child in his/her community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE)
Inadequate or lack of programs or services in the community or neighborhood
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50440
Child and Adolescent Scale of Environment (CASE) - Inadequate lack of family finance indicator
CASEInadLackFmlyFinInd
The indicator relating to the child's family having inadequate or a lack of family finances, as part of the Child Adolescent Scale of Environment (CASE)
Inadequate or lack of family finances
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50441
Child and Adolescent Scale of Environment (CASE) - Family stress indicator
CASEFmlyStressInd
The indicator relating to the child having stress from his/her family, as part of the Child Adolescent Scale of Environment (CASE)
Family stress
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50442
Child and Adolescent Scale of Environment (CASE) - Crime violence community neighborhood indicator
CASECrmVlCmmNghInd
The indicator relating to crime or violence in the community or neighborhood, as part of the Child Adolescent Scale of Environment (CASE)
Crime or violence in the community or neighborhood
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50443
Child and Adolescent Scale of Environment (CASE) - Government agency policy problem indicator
CASEGovtAgenPolicyProbInd
The indicator relating to child having problems with government agencies and policies, as part of the Child Adolescent Scale of Environment (CASE)
Problems with government agencies and policies
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50444
Child and Adolescent Scale of Environment (CASE) - Inadequate lack of information child diagnosis condition intervention approach indicator
CASEInaLacInfChiDiaConIntApInd
The indicator relating to there being an inadequate amount or lack of information about the child's diagnosis or condition or interventions or approaches, as part of the Child Adolescent Scale of Environment (CASE)
Inadequate or lack of information about your child’s diagnosis or condition or intervention approaches (e.g., educational, rehabilitation or medical)
  
Alphanumeric
Please put an X in the box under the appropriate column
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C50445
Child and Adolescent Scale of Environment (CASE) - Problem comment other text
CASEProbCommOTH
The free-text field describing any other problems or comments about the child, as part of the Child Adolescent Scale of Environment (CASE)
Other problems or comments (please specify):
  
Alphanumeric
No instructions available
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
 
255
Free-Form Entry
       
C50824
Child and Adolescent Scale of Environment (CASE) - Physical social environment support description text
CASEPhysSocEnvirDescTxt
The free-text field describing support for the child in the physical or social environment, as part of the Child Adolescent Scale of Environment (CASE)
Other problems or comments (please specify):
  
Alphanumeric
No instructions available
1) Bedell, G. (2004). Developing a follow-up survey focused on participation of children
and youth with acquired brain injuries after inpatient rehabilitation.
NeuroRehabilitation, 19, 191-205. 2) Bedell, G. (2009). Further validation of the Child and Adolescent Scale of Participation
(CASP). Developmental Neurorehabilitation, 12, 342-351. 3) Bedell, G.M., Cohn, E.S., Dumas, H.M. (2005). Exploring parents' use of strategies to
promote social participation of school-age children with acquired brain injuries.
American Journal of Occupational Therapy, 59(3), 273-284. 4) Bedell, G., & Dumas, H. (2004). Social participation of children and youth with acquired
brain injuries discharged from inpatient rehabilitation: A follow-up study. Brain
Injury, 18, 65-82. 5) Dumas H.M., Bedell, G.M., & Hamill, M.S. (2003). Strategies to promote activity and
participation in children and youths with acquired brain injuries. International
Journal of Rehabilitation Research, 26(4), 303-307. 6) Galvin, J, Froude, E.H., & McAleer, J. (2010). Children’s participation in home, school
and community life after acquired brain injury. Australian Occupational Therapy
Journal, 57,118–126. 7) Haley S., Coster, W., Ludlow L., Haltiwanger J., & Andrellos J. (1992). Pediatric
Evaluation of Disability Inventory: Development, standardization, and administration manual, version 1.0. Boston, MA: Trustees of Boston University, Health and Disability Research Institute. 8) Khetani, M., Bedell, G. Coster, W., Law, M., & Cousins, M. (in press). Measures of
physical, social and attitudinal environmental factors for children with disabilities. In
A. Majnemer (Ed.), Measures of outcomes and their determinants or children and
youth with developmental disabilities, London: Mac Kieth Press. 9) McCauley, S.R, Wilde, E.A., Anderson, V., Bedell, G., Beers, S.R., … & Yeates, K.O. (in
press). Recommendations for the use of common outcome measures on pediatric
traumatic brain injury research. Journal of Neurotrauma. 10) McDougall, J., Wright, V., Schmidt, J., Miller, L., & Lowry, K. (2011). Applying the ICF
framework to study changes in quality-of-life in children with chronic conditions.
Developmental Neurorehabilitation, 14(1), 41-53. 11) Sherwin, E., Whiteneck, G., Corrigan, J., Bedell, G., Brown, M., … Kreutzer, J. (2006).
Domains of a TBI minimal data set: Community reintegration phase. Brain Injury,
20(4), 383-389. 12) Weintraub, N., Rot, I, Shoshani, N., Pe'er, J., & Weintraub, M. (2011). Participation in
daily activities and quality of life in survivors of retinoblastoma. Pediatric Blood
Cancer, 56, 590-594. 13) Wells, R, Minnes, P, & Phillips, M. (2090). Predicting social and functional outcomes for
individuals sustaining paediatric traumatic brain injury. Developmental
Neurorehabilitation, 12, 2-23. 14) Whiteneck, G.G, Harrison-Felix, C.L., Mellick, D.C., Brooks, C.A., Charlifue, S.B., &
Gerhart, K.A. (2004). Quantifying environmental factors: A measure of physical,
attitudinal, service, productivity and policy barriers. Archives of Physical Medicine
and Rehabilitation, 85, 1324-1335. 15) World Health Organization [WHO] (2001). International Classification of Functioning,
Disability and Health. Geneva: World Health Organization. 16) World Health Organization [WHO] (2007). International Classification of Functioning,
Disability and Health – Children and Youth Version. Geneva: World Health
Organization.
Adult;Pediatric
Supplemental
1.0
7/26/2016
Aliases for variable name not defined
Child and Adolescent Scale of Environment (CASE)
Family and Environment
Outcomes and End Points
 
4000
Free-Form Entry
       
12-14-2018
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