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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Stroke
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Stroke Specific Quality of Life Scale (SS-QOL)
Item count: 50 (50 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C13140
Stroke Specific Quality of Life Scale (SS-QOL) - tired energy question scale
SSQOLTiredEnergQuesScale
The scale for feeling tired most of the time based on Stroke Specific Quality of Life Scale (SS-QOL).
I felt tired most of the time
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q1 energy
 
Single Pre-Defined Value Selected
       
C13141
Stroke Specific Quality of Life Scale (SS-QOL) - rest energy scale
SSQOLResEnScale
The scale for having to stop and rest during the day based on Stroke Specific Quality of Life Scale (SS-QOL).
I had to stop and rest during the day
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q2 energy
 
Single Pre-Defined Value Selected
       
C13142
Stroke Specific Quality of Life Scale (SS-QOL) - too tired energy scale
SSQOLTooTireEnerScale
The scale for too tired to do things based on Stroke Specific Quality of Life Scale (SS-QOL).
I was too tired to do what I wanted to do
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q3 energy
 
Single Pre-Defined Value Selected
       
C13143
Stroke Specific Quality of Life Scale (SS-QOL) - not join family roles scale
SSQOLNotJoinFamRolScale
The scale for not joining activities for fun with family based on Stroke Specific Quality of Life Scale (SS-QOL).
I didn't join in activities just for fun with my family
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q1 family roles
 
Single Pre-Defined Value Selected
       
C13144
Stroke Specific Quality of Life Scale (SS-QOL) - burden family roles scale
SSQOLBurdFamScale
The scale for feeling burden to family based on Stroke Specific Quality of Life Scale (SS-QOL).
I felt I was a burden to my family
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q2 family roles
 
Single Pre-Defined Value Selected
       
C13145
Stroke Specific Quality of Life Scale (SS-QOL) - interfere family roles scale
SSQOLInterFamRolScale
The scale for physical condition interfering with personal life based on Stroke Specific Quality of Life Scale (SS-QOL).
My physical condition interfered with my personal life
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q3 family roles
 
Single Pre-Defined Value Selected
       
C13146
Stroke Specific Quality of Life Scale (SS-QOL) - trouble speaking language scale
SSQOLTroubSpeakLangScale
The scale for having trouble speaking based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you have trouble speaking? For example, get stuck, stutter, stammer, or slur your words
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q1 language
 
Single Pre-Defined Value Selected
       
C13147
Stroke Specific Quality of Life Scale (SS-QOL) - trouble phone language scale
SSQOLTroubPhonScale
The scale for trouble speaking on phone based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you have trouble speaking clearly enough to use the telephones
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q2 language
 
Single Pre-Defined Value Selected
       
C13148
Stroke Specific Quality of Life Scale (SS-QOL) - trouble communication language scale
SSQOLTroubCommLangScale
The scale for people having trouble in understanding what person is saying based on Stroke Specific Quality of Life Scale (SS-QOL).
Did other people have trouble in understanding what you said
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q3 language
 
Single Pre-Defined Value Selected
       
C13149
Stroke Specific Quality of Life Scale (SS-QOL) - trouble words language scale
SSQOLTroubWordLangScale
The scale for trouble finding words to say things based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you have trouble finding the word you wanted to say
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q4 language
 
Single Pre-Defined Value Selected
       
C13150
Stroke Specific Quality of Life Scale (SS-QOL) - repeat language scale
SSQOLRepLanScale
The scale for repeating self so others can understand based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you have to repeat yourself so others could understand you
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q5 language
 
Single Pre-Defined Value Selected
       
C13151
Stroke Specific Quality of Life Scale (SS-QOL) - walking mobility scale
SSQOLWalkMobScale
The scale for having trouble walking based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you have trouble walking
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
If patient can't walk, go to question 4 and score questions 2-3 as 1.
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q1 mobility
 
Single Pre-Defined Value Selected
       
C13152
Stroke Specific Quality of Life Scale (SS-QOL) - balance mobility scale
SSQOLBalMobScale
The scale for losing balance when bending over to reach for something based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you lose your balance when bending over to or reaching for something
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
If patient can't walk, this question should be scored as 1.
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q2 mobility
 
Single Pre-Defined Value Selected
       
C13153
Stroke Specific Quality of Life Scale (SS-QOL) - climbing mobility question scale
SSQOLClimbMobQuesScale
The scale for trouble climbing stairs based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you have trouble climbing stairs
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
If patient can't walk, this question should be scored as 1.
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q3 mobility
 
Single Pre-Defined Value Selected
       
C13154
Stroke Specific Quality of Life Scale (SS-QOL) - rest mobility scale
SSQOLRestMobScale
The scale for stopping and resting more than usual based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you have to stop and rest more than you would like when walking or using a wheelchair
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q4 mobility
 
Single Pre-Defined Value Selected
       
C13155
Stroke Specific Quality of Life Scale (SS-QOL) - standing mobility scale
SSQOLStandMobScale
The scale for trouble with standing based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you have trouble with standing
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q5 mobility
 
Single Pre-Defined Value Selected
       
C13156
Stroke Specific Quality of Life Scale (SS-QOL) - getting out of chair mobility scale
SSQOLGetOutChairMobScale
The scale for trouble getting out of a chair based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you have trouble getting out of a chair
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q6 mobility
 
Single Pre-Defined Value Selected
       
C13157
Stroke Specific Quality of Life Scale (SS-QOL) - future mood scale
SSQOLFutMoodScale
The scale for being discouraged about future based on Stroke Specific Quality of Life Scale (SS-QOL).
I was discouraged about my future
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q1 mood
 
Single Pre-Defined Value Selected
       
C13158
Stroke Specific Quality of Life Scale (SS-QOL) - interest mood scale
SSQOLIntMoodScale
The scale for lack of interest in other people and activities based on Stroke Specific Quality of Life Scale (SS-QOL).
I wasn't interested in other people or activities
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q2 mood
 
Single Pre-Defined Value Selected
       
C13159
Stroke Specific Quality of Life Scale (SS-QOL) - withdrawn mood scale
SSQOLWithMoodScale
The scale for felt withdrawn from other people based on Stroke Specific Quality of Life Scale (SS-QOL).
I felt withdrawn from other people
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q3 mood
 
Single Pre-Defined Value Selected
       
C13160
Stroke Specific Quality of Life Scale (SS-QOL) - confidence mood question scale
SSQOLConfMoodQuesScale
The scale for lacking confidence based on Stroke Specific Quality of Life Scale (SS-QOL).
I had little confidence with myself
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q4 mood
 
Single Pre-Defined Value Selected
       
C13161
Stroke Specific Quality of Life Scale (SS-QOL) - food mood scale
SSQOLFoodMoodScale
The scale for lack of interest in food based on Stroke Specific Quality of Life Scale (SS-QOL).
I was not interested in food
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q5 mood
 
Single Pre-Defined Value Selected
       
C13162
Stroke Specific Quality of Life Scale (SS-QOL) - irritable personality scale
SSQOLIrritPerScale
The scale for being irritated based on Stroke Specific Quality of Life Scale (SS-QOL).
I was irritable
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q1 personality
 
Single Pre-Defined Value Selected
       
C13163
Stroke Specific Quality of Life Scale (SS-QOL) - impatient personality scale
SSQOLImpatPersonScale
The scale for impatience with others based on Stroke Specific Quality of Life Scale (SS-QOL).
I was impatient with others
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q2 personality
 
Single Pre-Defined Value Selected
       
C13164
Stroke Specific Quality of Life Scale (SS-QOL) - change personality scale
SSQOLChangPersonScale
The scale for personality change on Stroke Specific Quality of Life Scale (SS-QOL).
My personality has changed
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q3 personality
 
Single Pre-Defined Value Selected
       
C13165
Stroke Specific Quality of Life Scale (SS-QOL) - food self care scale
SSQOLFoodSelfCareScale
The scale for needing help to prepare food based on Stroke Specific Quality of Life Scale (SS-QOL).
Did you need help preparing food
1;2;3;4;5;
Total help - Couldn't do it at all - Strongly agree;A lot of help - A lot of trouble - Moderately agree;Some help - Some trouble - Neither agree nor disagree;A little help - A little trouble - Moderately disagree;No help needed - No trouble at all - Strongly disagree;
Numeric values
The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. The scale domains and items were derived from a series of interviews with post-stroke patients. (Examples of CDEs included: SS-QOL Energy; SS-QOL Family Roles; and SS-QOL Language)
Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Development of a stroke-specific quality of life scale. Stroke 1999 Jul;30(7):1362-9.
Adult
Supplemental
3.0
6/21/2013
Aliases for variable name not defined
Stroke Specific Quality of Life Scale (SS-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
SS-QOL Q1 self care
 
Single Pre-Defined Value Selected
       
07-22-2019
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