of0
Export
 
CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Sport Related Concussion
SubDisease: Comprehensive
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Traumatic Brain Injury - Quality of Life (TBI-QOL)
Item count: 23 (23 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C20551
TBI Quality of Life (TBI-QOL) - Ability participate social role activity T-score
TBIQOLAbilPartTScore
The T-Score related to degree of involvement in oneӳ usual social roles, activities, and responsibilities, including work, family, friends, and leisure, as part of the TBI Quality of Life (TBI-QOL).
Ability participate social role activity T-score
  
Numeric Values
TBI-QOL Ability to Participate may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20553
TBI Quality of Life (TBI-QOL) - Anger T-score
TBIQOLAngerTScore
The T-Score related to verbal and non-verbal components of self-reported angry mood (irritability, frustration), negative social cognitions (interpersonal sensitivity, envy, disagreeableness), and efforts to control anger, as part of the TBI Quality of Life (TBI-QOL).
Anger T-score
  
Numeric Values
TBI-QOL Anger may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
31.7
86.7
     
C20555
TBI Quality of Life (TBI-QOL) - Anxiety T-score
TBIQOLAnxietyTScore
The T-Score related to symptoms that reflect autonomic arousal and experience of threat, including self-reported fear, anxious misery, hyperarousal (tension, nervousness, restlessness), and somatic symptoms related to arousal (racing heart, dizziness), as part of the TBI Quality of Life (TBI-QOL).
Anxiety SF T-score
  
Numeric Values
TBI-QOL Anxiety may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
36
85.1
     
C20556
TBI Quality of Life (TBI-QOL) - Ask help T-score
TBIQOLAskHelpTScore
The T-Score related to ability to and comfortability with asking others for help, as part of the TBI Quality of Life (TBI-QOL).
   
Numeric Values
TBI-QOL Asking for Help is only available as an 8-item fixed-length form.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20558
TBI Quality of Life (TBI-QOL) - Attention concentration T-score
TBIQOLAttConcTScore
The T-Score related to attention/concentration, as part of the TBI Quality of Life (TBI-QOL).
   
Numeric Values
TBI-QOL Attention/Concentration is a content-specific short form from within the TBI-QOL General Concerns item bank. Attention/Concentration is only available as a 6-item short form.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20559
TBI Quality of Life (TBI-QOL) - Communication comprehension T-score
TBIQOLCommCompTScore
The T-Score related to perceived difficulties related to oral expression, language production, articulation, comprehension, and organization, as part of the TBI Quality of Life (TBI-QOL).
Communication T-score
  
Numeric Values
TBI-QOLCommunication/Comprehension may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
12
85
     
C20561
TBI Quality of Life (TBI-QOL) - Depression T-score
TBIQOLDepressTScore
The T-Score related to self-reported negative mood (sadness, guilt), views of self (self-criticism, worthlessness), and social cognition (loneliness, interpersonal alienation), as well as decreased positive affect and engagement (loss of interest, meaning, and purpose, as part of the TBI Quality of Life (TBI-QOL).
Depression T-score
  
Numeric Values
TBI-QOLDepression may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20562
TBI Quality of Life (TBI-QOL) - Emotional behavioral dyscontrol T-score
TBIQOLEBDTScore
The T-Score related to a set of injury and/or treatment related manifestations including disinhibition, emotional lability, irritability, impatience, and impulsiveness, as part of the TBI Quality of Life (TBI-QOL).
Emotional behavioral dyscontrol T-score
  
Numeric Values
TBI-QOL Emotional & Behavioral Dyscontrol may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20564
TBI Quality of Life (TBI-QOL) - Cognition executive function T-score
TBIQOLExecFxnTScore
The T-Score related to perceived difficulties in applications of mental function related to planning, organizing, calculating, and problem solving, as part of the TBI Quality of Life (TBI-QOL).
Executive function T-score
  
Numeric Values
TBI-QOL Cognition - Executive Function may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
12
85
     
C20565
TBI Quality of Life (TBI-QOL) - Fatigue T-score
TBIQOLFatigueTScore
The T-Score related to sensations ranging from tiredness to an overwhelming, debilitating and sustained sense of exhaustion that likely decreases oneӳ ability to execute daily activities and function normally in family or social roles, as part of the TBI Quality of Life (TBI-QOL).
Fatigue T-score
  
Numeric Values
TBI-QOL Fatigue may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
32.7
80.7
     
C20567
TBI Quality of Life (TBI-QOL) - Cognition general concerns T-score
TBIQOLCogGenTScore
The T-Score related to perceived difficulties in everyday cognitive abilities such as learning, memory, attention, and concentration, as part of the TBI Quality of Life (TBI-QOL).
Cognition General Concerns T-score
  
Numeric Values
TBI-QOL Cognition - General Concerns may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20568
TBI Quality of Life (TBI-QOL) - Grief loss T-score
TBIQOLGriefTScore
The T-Score related to emotional reactions of grief (the natural process of reacting to a loss) such as anger, guilt, anxiety, sadness, and despair, as part of the TBI Quality of Life (TBI-QOL).
Grief/Loss T-score
  
Numeric Values
TBI-QOL Grief/Loss may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20570
TBI Quality of Life (TBI-QOL) - Headache T-score
TBIQOLHeadacheTScore
The T-Score related to various aspects of headache pain including subjective experience of headache pain, the quality and severity of headache pain, and consequences of headache pain on relevant aspects of oneӳ day to day life, as part of the TBI Quality of Life (TBI-QOL).
Headache Pain T-score
  
Numeric Values
TBI-QOL Headache may be as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20574
TBI Quality of Life (TBI-QOL) - Independence T-score
TBIQOLIndepTScore
The T-Score related to perceived independence, ability to tell others about oneӳ needs, and sense of control over oneӳ life, as part of the TBI Quality of Life (TBI-QOL).
Independence T-score
  
Numeric Values
TBI-QOL Independence may be as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20576
TBI Quality of Life (TBI-QOL) - Learning memory T-score
TBIQOLLearnMemTScore
The T-Score related to learning and memory, as part of the TBI Quality of Life (TBI-QOL).
   
Numeric Values
TBI-QOL Learning/Memory is a content-specific short form from within the TBI-QOL General Concerns item bank. Learning/Memory is only available as a 6-item short form.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20578
TBI Quality of Life (TBI-QOL) - Mobility T-score
TBIQOLMobTScore
The T-Score related to ability to carry out various activities involving the trunk region and increasing degrees of bodily movement, ambulation, balance, or endurance, as part of the TBI Quality of Life (TBI-QOL).
Mobility T-score
  
Numeric Values
TBI-QOL Mobility may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20580
TBI Quality of Life (TBI-QOL) - Pain interference T-score
TBIQOLPainIntTScore
The T-Score related to consequences of pain on relevant aspects of oneӳ life, including the extent to which pain hinders engagement with social, cognitive, emotional, physical, and recreational activities, as part of the TBI Quality of Life (TBI-QOL).
Pain Interference T-score
  
Numeric Values
TBI-QOL Pain Interference may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20581
TBI Quality of Life (TBI-QOL) - Resilience T-score
TBIQOLResilTScore
The T-Score related to subjective experience of the process and outcome of successfully adapting to difficult or challenging life experiences, especially highly stressful or traumatic events, as part of the TBI Quality of Life (TBI-QOL).
Resilience T-score
  
Numeric Values
TBI-QOL Resilience may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20582
TBI Quality of Life (TBI-QOL) - Satisfaction social roles activities T-score
TBIQOLSatSRATScore
The T-Score related to satisfaction with involvement in oneӳ usual social roles, activities, and responsibilities, including work, family, friends, and leisure, as part of the TBI Quality of Life (TBI-QOL).
Satisfaction with social roles and activities T-score
  
Numeric Values
TBI-QOL Satisfaction with Social Roles & Activities may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C22175
TBIQOL-Positive affect and well-being t-score
TBIQOLPosAffWlBngTScore
Part of the TBIQOL assessment
Positive Affect and Well-being T-score
  
Numeric Values
TBI-QOL Positive Affect and Well-being may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
6/8/2016
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
0
      
C20583
TBI Quality of Life (TBI-QOL) - Self esteem T-score
TBIQOLSelfEstTScore
The T-Score related to assessment of oneӳ emotional, evaluative, and cognitive perceptions of competence and worth, as part of the TBI Quality of Life (TBI-QOL).
Self-esteem T-Score
  
Numeric Values
TBI-QOL Self-esteem may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20584
TBI Quality of Life (TBI-QOL) - Stigma T-score
TBIQOLStigTScore
The T-Score related to othersҠperceptions of oneself and publically enacted negativity, prejudice, and discrimination as a result of injury-related manifestations, as part of the TBI Quality of Life (TBI-QOL).
Stigma T-score
  
Numeric Values
TBI-QOL Stigma may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
C20585
TBI Quality of Life (TBI-QOL) - Upper extremity function T-score
TBIQOLUEXTScore
The T-Score related to ability to carry out various activities involving digital, manual, and reach-related functions, ranging from fine motor to self-care (activities of daily living), as part of the TBI Quality of Life (TBI-QOL).
Upper Extremity function T-score
  
Numeric Values
TBI-QOL Upper Extremity may be administered as a computerized adaptive test (CAT) or short form (SF). Either method will yield a directly comparable T-score value on the same metric.
Carlozzi NE, Tulsky DS, Kisala PA. Traumatic brain injury patient-reported outcome measure: identification of health-related quality-of-life issues relevant to individuals with traumatic brain injury. Arch Phys Med Rehabil. 2011;92(10Suppl):S52–S60.
Adult
Exploratory
1.0
5/20/2015
Aliases for variable name not defined
Traumatic Brain Injury - Quality of Life (TBI-QOL)
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Free-Form Entry
15
85
     
12-19-2018
Page 1 of 1