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CDE Detailed Report
This report contains detailed information about the selected CDEs.
Note: If at least one CDE was selected from a copyright- or trademark-protected instrument/scale then all of the CDEs from that instrument/scale are included in this report.
Disease: Sport Related Concussion
SubDisease: Comprehensive
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Neuro-QOL Adult Bank - Stigma
Item count: 24 (24 distinct CDEs)
CDE ID
CDE Name
Variable Name
Definition / Description
Question Text
Permissible Value
Description
Data Type
Instructions
References
Population
Classification (e.g., Core)
Version #
Version Date
Aliases for Variable Name
CRF Module / Guideline
© or TM
Sub-Domain
Domain
Previous Title
Size
Input Restrictions
Min Value
Max Value
Measurement Type
LOINC ID
SNOMED
caDSR ID
CDISC ID
C21293
Quality of Life - Stigma illness recent assessment scale
QoLStgmaIllnessRcntAssessmtScl
The scale representing how often the participant was avoided by some people because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness some people avoided me.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
Part of Stigma-Short Form 7a
NQSTG02
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21294
Quality of Life - Stigma illness left out event recent assessment scale
QoLStgmaIlnssLftOutEvntRcntScl
The scale representing how often the participant felt left out of things because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, I felt left out of things.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
Part of Stigma-Form 7a
NQSTG04
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21295
Quality of Life - Stigma illness avoid visual contact recent assessment scale
QoLStgmaIllnssAvodCntctRcntScl
The scale representing how often people avoided looking at the participant because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, people avoided looking at me.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
Part of Stigma-Short Form 7a
NQSTG08
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21296
Quality of Life - Stigma illness embarassment recent assessment scale
QoLStgmaIllnssEmbrssmtRcntScl
The scale representing how often the participant felt embarassed about their illness lately, as part of Neuro-QOL Stigma.
Lately I felt embarassed about my illness.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21297
Quality of Life - Stigma illness uncomfortable other people recent assessment scale
QoLStgmIlnssUncmftblPplRcntScl
The scale representing how often some people seemed uncomfortable with the participant because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, some people seemed uncomfortable with me.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
Part of Stigma-Short Form 7a
NQSTG01
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21298
Quality of Life - Stigma illness physical limit embarassment recent assessment scale
QoLStgmIllnssPhyclLmtRcntScl
The scale representing how often the participant felt embarassed because of their physical limitations lately, as part of Neuro-QOL Stigma.
Lately I felt embarassed because of my physical limitations.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21299
Quality of Life - Stigma illness unkind treatment recent assessment scale
QoLStigmIllnssUnkndTreatmntScl
The scale representing how often people were unkind to the participant because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, people were unkind to me.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21300
Quality of Life - Stigma illness blame recent assessment scale
QoLStigmaIllnssBlameRecentScl
The scale representing how often some people acted as though it was the participant's own fault they have this illness lately, as part of Neuro-QOL Stigma.
Lately some people acted as though it was my own fault I have this illness.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21301
Quality of Life - Stigma illness emotional distance recent assessment scale
QoLStigmIllnssEmotnlDstRcntScl
The scale representing how often the participant felt emotionally stable lately, as part of Neuro-QOL Stigma.
Lately because of my illness, I felt emotionally distant from other people
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21302
Quality of Life - Stigma illness ridicule recent assessment scale
QoLStigmIllnssRidiculeRcntScl
The scale representing how often people made fun of the participant because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, people made fun of me.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
Part of Stigma-Short Form 7a
NQSTG06
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21303
Quality of Life - Stigma illness social situation embarassment recent assessment scale
QoLStigmIlnssSocSituEmbRcntScl
The scale representing how often the participant felt embarassed in social situations because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, I felt embarassed in social situations.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21304
Quality of Life - Stigma illness stranger stare recent assessment scale
QoLStgmIllnssStrngStareRcntScl
The scale representing how often strangers tended to stare at the participant because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, strangers tended to stare at me.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21305
Quality of Life - Stigma illness other people attitude worry recent assessment scale
QoLStgmIlnssOthPplAttidRcntScl
The scale representing how often the participant worried about other people's attitudes towards him/her lately, as part of Neuro-QOL Stigma.
Lately because of my illness, I worried about other people's attitudes towards me.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21306
Quality of Life - Stigma illness unfair treatment recent assessment scale
QoLStgmIllnssUnfrTrtmntRcntScl
The scale representing how often the participant was treated unfairly by others because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, I was treated unfairly by others.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21307
Quality of Life - Stigma illness affect appearance unhappiness recent assessment scale
QoLStgmIlnssApprncUnhpyRcntScl
The scale representing how often the participant was unhappy about the way their illness affected their appearance lately, as part of Neuro-QOL Stigma.
Lately I was unhappy about how my illness affected my appearance.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21308
Quality of Life - Stigma illness difficult maintain cleanliness recent assessment scale
QoLStgmIlnssDifMaintClnRcntScl
The scale representing how often it was hard for the participant to stay neat and clean because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, it was hard for me to stay neat and clean.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21309
Quality of Life - Stigma illness people ignore good input recent assessment scale
QoLStgmIlnssPplIgnrInptRcntScl
The scale representing how often people tended to ignore the participant's good points because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness people tended to ignore my good points.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21310
Quality of Life - Stigma illness burden worry recent assessment scale
QoLStgmIlnssBrndnWrryRcntScl
The scale representing how often the participant worried that he/she was a burden to others because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, I worried that I was a burden to others.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21311
Quality of Life - Stigma illness speech embarassment recent assessment scale
QoLStgmIlnssSpchEmbrsmntRctScl
The scale representing how often the participant felt embarassed about their speech lately, as part of Neuro-QOL Stigma.
Lately I felt embarassed about my speech.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21312
Quality of Life - Stigma illness different feel compare other people recent assessment scale
QoLStgmIlnssFeelCmprPplRcntScl
The scale representing how often the participant felt different from others because of their illness lately, as part of Neuro-QOL Stigma.
Lately because of my illness, I felt different from others.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21313
Quality of Life - Stigma illness blame self problem recent assessment scale
QoLStgmIlnssBlamSlfProbRcntScl
The scale representing how often the participant tended to blame himself/herself for their problems lately, as part of Neuro-QOL Stigma.
Lately I tended to blame myself for my problems.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21314
Quality of Life - Stigma illness new friend avoidance recent assessment scale
QoLStgmIlnssNewFrndAvdRcntScl
The scale representing how often the participant avoided making new friends to avoid telling others about their illness lately, as part of Neuro-QOL Stigma.
Lately I avoided making new friends to avoid telling others about my illness.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21315
Quality of Life - Stigma illness other people lost job recent assessment scale
QoLStgmIlnssOthPplLstJbRcntScl
The scale representing how often people with the participant's illness lost their jobs when their employers found out about it lately, as part of Neuro-QOL Stigma.
Lately people with my illness lost their jobs when their employers found out about it.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
C21316
Quality of Life - Stigma illness lost friend recent assessment scale
QoLStgmIlnssLostFriendRcntScl
The scale representing how often the participant lost friends by telling them that they have this illness lately, as part of Neuro-QOL Stigma.
Lately I have lost friends by telling them that I have this illness.
1;2;3;4;5;
Never;Rarely;Sometimes;Often;always;
Numeric Values
Part of Neuro-QOL Adult Bank - Stigma
No references available
Adult;Pediatric
Supplemental
1.0
7/17/2015
Aliases for variable name not defined
Neuro-QOL Adult Bank - Stigma
Quality of Life/Patient Reported Outcomes
Outcomes and End Points
  
Single Pre-Defined Value Selected
       
12-19-2018
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